Neurofibromatosis Support Group

Neurofibromatosis is usually noncancerous. There are three types of this condition. Type 1 usually appears in childhood, while Types 2 and 3 appear in early adulthood. Type 1 can cause bone deformities, learning disabilities, and high blood pressure. Type 2 can cause hearing loss, vision loss, and difficulty with balance. Type 3 can cause chronic pain throughout the body....

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Genetic & Metabolic
/ Neurofibromatosis Support Group

blackouts and NF1

deleted_user
deleted_user
recently i have been blacking out, as a result I have had to go to hospital, all my tests that are conducted (pee test, bloods, and E.C.G) have come up normal, has anyone else suffered from the same thing, if you have please reply and let me know,
I'm very worried about being left alone during the day, it is getting to the point where my partner is thinking of quitting his job.
Please if you suffer from it or have some advice please, please message back.
StrawberryLetter23
StrawberryLetter23
my nf is all over me..and has been getting more and more painful...but I have blacked out once... the doctor said it was vertigo ...said I was a tad bit stressed..and need to rest....they did all the test...and gave me some fluids..he also gave me meds for dizziness..my family says its due to all the hours of work I'm putting in...and I do need to rest...I still get dizzy time from time..but haven't blacked out again..
wandyk
wandyk
I have the blacking out banged my head on a concrete floor. I just don't know have drs appoint with a new dr Thursday. I don't get dizzy although I'm clumsy never know when I'm going to come to on the floor.
Neurofibromatosis is no fun and people can be so cruel.
Let's keep in touch Mabey togeather we can find out something I live on the outer banks of NCDOT the drs here don't have a clue.