Myelodysplasia Support Group
The myelodysplastic syndromes (formerly known as "preleukemia") are a diverse collection of haematological conditions united by ineffective production of blood cells and varying risks of transformation to acute myelogenous leukemia. Anemia requiring chronic blood transfusion is frequently present. Although not a true malignant neoplasm, MDS is nevertheless classified...
I would like to know if anyone continued to work or if it was just too difficult for you. I am a teacher and I love my job, not being able to work would be just another nightmare. I feel great, sometimes a bit tired but overall, I am fine. My WBC and Platelets are normal, just my hemoglobin is low (last week it was 7.8 before my unit). Any advice?
No need to stop. Just relax when you can and do not think too much about this disease. Life goes on! Try to keep a positive attitude and enjoy what you're doing.
Keep in touch and all the best to you
Myself I am retired but to keep me occupied I am a film critic. I go to press screenings & cover film festivals. Altho I do need to pace myself; it is better than the alternative -- staying home with no company ex a noisy neigbour. Also I am preparing to move. So the key is pacing yourself
Sylvain
I was a college professor and it was the love of my life. I had to discontinue because of the fatigue and shortness of breath. Would have stayed but 3 - 4 hour lectures got to be out of the question.
Advice? Stay until they have to drag you out.