Myasthenia Gravis Links and News Community Group
This group is for keeping track of news, links, studies, and other information that is helpful for people with Myasthenia, whether you are newly diagnosed or you have had MG for awhile.
Can prednisone be taken intramusculer or intravenously? My doctor wants me to take IVIG for my Myasthenia Gravis. The prednisone hurts my stomach too much to take orally. I don't think I'm ready for IVIG yet.
Is it the needles that scare you? I can understand that. I’ve been getting ivig for more than 20 years now and it’s really a piece of cake. It doesn’t cause side effect effects like some of the other medicines for mg. It will help you a lot so take the plunge. Having myasthenia is so much worst than needles. Just try to take deep breaths! It’s not even a metal needle anymore, they use plastic catheters which is so much better since it allows you some movement. The pain is not worst than a mosquito bite. Good luck!
My husband has been managing his MG with Mestinon alone for 23 years and has recently been experiencing vocal cord paralysis. It is very frightening and the ENT said that the way the vocal cords are reacting can abruptly cut his air supply and require an emergency tracheotomy to allow him to breathe. I read where immunosuppressant drugs can help. When he was recently hospitalized for the airway obstruction they didn't check his vocal cords and sent him home untreated, When they were suggesting immunosuppressant drugs, they said he would have to do the IVIG treatment first. But, your comments seem to indicate the IVIG could be the treatment. Or is it a way to get on the other drugs?