I have nasty leg pain too but I'm still very new when it comes to pain management. You say that the leg pain is constant but does anything make it worse? You may be able to modify things that irritate it further. How much are you on your legs during the day? Does time of day make any kind of difference? Can you tell if it's from tight muscles or if it's from the nerves themselves? Sorry to ask all kinds of questions but maybe your pain level can be reduced slightly if it's irritated by any particular activities. I hope this is a flare and will resolve itself soon. Does your doctor know about this or is the Opana an old prescription? I'll be back to check on your post. I'm sorry you're having to deal with this Lynne and I hope you feel better soon.
((big hugs)) Crystal

There are lots of pain meds you can take--and muscle relaxers too. It sounds like extremely bad spasticity...I get this alot too :( Especially before I sleep. No position works, its all just excruciating
Try baclofen? It does make you sleepy though..
Lyrica or cannabis or neurontin... those work WONDERS for pain

Best of all for me is I take a magnesium supplement--4 caps daily.
http://www.amazon.com/Pure-Encapsulations-Magnesium-Citrate-Capsule/dp/B0017CRZIK/ref=sr_1_3?ie=UTF8&qid=1301679668&sr=8-3
I can't sleep without this stuff and its all natural! It just promotes a regular sleep cycle and helps with cramping muscles. It's amazingly effective!

Other than that can try acupuncture! It works well for my lower back pain and neck/head pain...

So sorry you're going through this! Ice or heat help? I'm heat sensitive but ice tends to help a lot of my pain...

HUGS

I have or do use neuron tin and magnesium and the pain has decreased some. I did a study for a clinic here in Denver for the use of Cymbalta for pain. Now they are marketing it as a pain medication as well as something for depression.

that's what came to mind, like marilyn4342... Magnesium... maybe 500MG /day

Crystal, thanks for your reply. No, nothing makes them worse. They hurt day and night for some reason, just out of the blue this pain came on. I'm at the point of crying out from the pain. I believe it is nerve pain from the type of zinging, electrical shock feelings in my legs. It's driving me crazy. I feel like I did 2 years ago when MS first reared it's ugly head. Maybe this is part of my flare that I'm currently in? I've never experienced pain like this with flares befores, or maybe I really hadn't been in a flare before. That is one thing I really don't get, is when I'm flaring or not. It seems that my MS just progresses to another level and stays there. No symptoms go away. So that is why I don't understand if I'm flaring or not. But this time, since I've been dealing with some stress, too many symptoms have reared their ugly heads for me not to realize I'm in a flare. Maybe the intense pain is just part of it? I saw my pain management doctor yesterday, thank goodness had an appt. already, She gave me delauden (spell?) but it doesn't help. My husband thinks I have to build up the medication for it to work, I say no, it should work right away and that I aught to call my PMS and tell them it's not working. I think I will do that today.

Humanculus, thanks too for your reply. No, I believe the pain is nerve pain from the electrical shock feelings I get zinging down my legs. I have tried to increase my baclofen and am taking the max dose now, so that is not an option any further. Getting high? That is an option, but haven't thought of it so thanks, will try that today I think!! In stead of neurontin, I take Lyrica. I think I will bump up my Lyrica dose, so thanks too for that one. Lyrica helps with nerve pain. You've got something there. I can't imagine putting ice or heat on my legs, I don't want anything to touch them. Even my clothes bother them!

Marilyn and Larry, I already take 1000 mg,. mnagnesium daily. Doesn't seem to help me walk or the pain at all. I tried Cymbalta once during early treatment of pain, but it didn't do anything.

So all, thanks so much for your replies. I think I will call my pain management specialist today and complain about the delauden not working and bump up my Lyrica. I also might try taking a few hits of MJ, who knows? It is really not something that I prefer to do, but if I get desperate enough at night, it's worth a try.

Have you tried Lyrica? There is another one called "Skelaxin" which is some sort of a muscle relaxant and is costly (like Lyrica is) and only helps to a point. It seems over time none of these do much at all.

I also bought some compression socks which go up to the knee. They are men's socks but they seem to run a bit small so they fit me ok. They seem to hold the leg in a bit and help a bit.

I've been on/off morphine for the pain. However, I've pretty much quit taking a it as it is highly addictive and very similar (if not identical but a lot cheaper) than Opana.

Have you tried massage at all. That can help. If you don't have anyone to massage your legs, you can do it yourself.

I wish I had better answers for you but it seems like everything to do with MS is guess work. :(

Hi, I missed the part of your reply re: Lyrica. I did not see all of that (duh).

Again, I wish I had better answers for you re: leg pain. Your pain sounds like it is neuropathy pain but it could be a combination of neuropathy pain as well as pain from spasticity. It is often difficult to sort the two out.

I get some real intense spams in my feet and legs and you cannot walk or move the limb affected when it happens. I think this is the difference in part between the two.

I would have said Magnesium but it has been brought up already.

You could also reduce sugar, increase B vitamins (shown to help some with diabetes neuropathy), make sure you have enough Calcium citrate or Calcium malate and Vitamin D3 /fish oil so you can absorb the calcium.

Hope you can work with your doc to find something that helps,
EP

1000 MG a day? Every Day?


YOU MAY BE OVERDOSING ON IT

I take 500 MG Mag, once every 3 days.

TOO much is not good either.

And LDN 3 or 4.5 MG helps greatly too.

and I take B1 100 MG daily, except a Super B Complex instead, every 3rd day

I just remembered something. Somewhere on this site is an article about MS neuropathy and pain in the legs. It stated the the most effective drug for it is methadone.
I've taken methadone a few times and yes, it does help.
However, doctors do not like to prescribe it because it is apparently very hard on the liver.
If you don't care about this aspect of it, you may wish to discuss the use of methadone with your doctor and see what he/she thinks about it.

Just saying....I'm dealing with the same issue. Constant leg and feet pain and it is horrible. Am currently in pain management trying to find something that works. I'm real good at hiding how I feel, but this task is becoming harder and harder. I refuse to give in to this sh*&!! I hope you find something that works for you. I will be glad to post when/if i find something. Right now, taking Avinza which isn't working. worked for 3 days and then "bam"!! Sending positive thoughts your way! Love and Light...

I know there are meds used just for nerve pain but none really did the trick for me. Sorry to say I use narcotics...A low dose of oxycidone-acetaminophen four times a day. I don't like being on a narcotic and dread even thinking of taking a higher dose (I have decided I won't). Just hoping I don't have to face it. For now it works.

I did try the pain patches (Fentanyl) but they were too strong...I have heard they work for some. It might be worth a try.

I hate hearing of any in pain. I hope you find some relief.