MS People Dealing with MS Pain Community Group
So many people have pain from their Multiple Sclerosis in so many ways. Some from spasms, some through neuropathy, optis neuritis eye pain, etc. This group lets you "talk" about your pain and offers assistance to others who experience all kinds of MS pain related issues. Through your participation, you are helping folks find a centralized place for all their questions and...
And by the way, I swore I would never be a member of a subgroup by I find Ichoppel to be very open. She was kind enough to write a private note explaining to me why a post had been removed from the main board. It wasn't due to the content. It was due to the langage being used. I feel yes...sure...boards need to have standards and that should be one. I was very pleased to find it wasn't due to different opinions and we had been allowed to be very vocal. I respect DS for allowing that for their posters.
As always I try to be active on any board i become a member of but sometimes my fingers won't work....but i will be here.
Thank you, Ichoppel. I do feel you are an open person and not a control freak that won't allow an adult discussion.
I sit here rocking, I am in so much 'ache'. As of yet i am not dx-ed with anything. first I was told possible MS, now Im being told possible Parkinson's. But definitely I was told arthritis, in my hips and jaws (upper& lower).
Ive taken everything rx Ive been given but this sure as hell isnt cuttin' it--and like you makes me wonder if all this pain isnt more than just arthritis. In retrospect of being told arthritis, I can see how in years back, that dx fits. But the pain an ache that I feel now, is nothing like it 'was'.....this is absolutely debilitating !! I dont know where I really belong on the DS boards anymore MS or PD?? so I just keep bouncing back and forth :(
catch cha on the flip side,
Sandy
The backache with MS is different. It is like an open exposed raw nerve. It never goes away. No pain meds touch it.
Yea, I know exactly what you are talking about. It took ten years to find a doctor that would be wise enough to go beyond my complaint of back pain invesitgating further. I was shocked to find my toes were numb? I had never had a real neuro exam. She asked me to close my eyes and tell her which toe she was touching. My answer was, "They feel like cotton."
Keep searching. I wish I had. My body suffers today due to lack of treatment.