This is my first time posting to a group, much less creating one, but I can't find a group for MCD(unless it is the kids version). I have adult on-set MCD. I was diagnosed 4 months ago. I have been on Prednisone for almost 4 months. I started with a dose of 80 mg. I have tapered down to 20 mg. I will be on it for at least 2 more months. It has been a rough road. I have moon face and horrible heartburn, mood swings, insomnia, night sweats and more. I have also developed high blood pressure and lower back pain. It has been a bundle of fun. I scanned the Internet to find info about my disease and to find others with it to see what to expect. I found a lot about the kid version, but had a hard time finding too much about the adult version. I have a lot of questions and hope someone will find this page and we can compare notes.
Hi! I just found this website and now your group! I was diagnosed in July of this year and have been on Prednisone ever since. I am currently tapering off slowly but I can't wait to get off. My nephrologist is saying by April I will be completely off of it for this go around. I am having the worst of side effects. I have already been diagnosed with Bipolar and Anxiety, and now with the Prednisone, it has been a flame to the fire. I am having a really rough time. It seems like the longer I'm on it the worst I feel. I am so glad you started this group and I hope others join for more support.