March/April/May 2018 IVF Buddies Community Group

Ladies going through IVF this year supporting each other through the process!

0 Online

hope114 09/01/2017

Ladies,

I got blood test results back and my thyroid peroxidase antibodies (TPO) level was almost 200! I do have Hashimotos disease, but typically, my TPO is below 30, which is normal. My RE (whom I won't be seeing anymore) had told me to get the blood work and follow up with an endocrinologist because she doesn't feel comfortable handling hashimotos. I gave my WTF face on the phone when she told me, lol. Like wI thought your specialty was freakin endocrinology?! Bad news is, there are ZERO available endocrinology appointments in the entire San Diego county until end of September, early October. 2nd WTF moment. I just want to scream. The TPO being elevated is what has made me feel sick for the past several weeks. Now that I know its abnormal, I feel a lot of anxiety. A study showed that high TPO with normal other hormones (T3, T4) would NOT necessarily cause IVF failure, so it might be zero impact. Waiting now to hear back from new RE and a closer, local endo that may have an opening as soon as Sept 20. Seems so far away!!!

Anyone of you ever have high TPO? Reading Dr. Google seems to show there is no real treatable fix. They won't medicaate me unless my other thyroid hormones are abnormal.

Hanging in there. Hope you are all doing better than me! I plan to drink wine tonight...just a warning!

blbnjf 09/01/2017

Oh girl, you have earned a couple of glasses of wine. I am not familiar with your situation and numbers but I do hope that someone is able to help you get it all figured out. It always seems like whenever it can't be anymore complicated, it gets more complicated. I hope you have a restful holiday weekend:)

chadswife 09/02/2017

I have read that sometimes they will put you on steroids if your TPO is high. Maybe getting new minds on your case is a good thing, even though it is so frustrating!! I hate you're having to go through this... hang in there. This infertility ride sucks!!!

mrsmooney826 09/06/2017

So frustrating! Mine has never been that high, but it has jumped around quite a bit. Luckily my RE was able to get it back to normal through LOTS of trial and error. I think getting a new medical team involved is the best thing for you! And at least you know why you haven't felt great.... knowledge is power. Keep us posted! Sending you lots of love and positive vibes!

hope114 09/14/2017

Hello! Thank you all for your kind words! I finally had my first endocrinology appointment and it was reassuring. The doc did a thyroid ultrasound, read my blood test results and said everything looked normal except my TPO. She ordered new tests to verify Graves' disease and diabetes. I had her tack on a gluten intolerance test too. I also asked the new RE if I would still be ok doing IVF with high antibodies. He said research says it doesn't negatively impact IVF. Only thing that is bad is hypothroidism. So I am ok for now. Thank God. And one more thing, I had an HSG and it was all clear. Next step is wait until Aunt Flo shows up and do a baseline in 7-10 days. Hope you're all well!

mrsmooney826 09/25/2017

That sounds excellent!! I am glad things are finally moving in your favor again!

Join the Conversation