My husband was diagnosed, for the second time, with colorectal cancer. His first diagnosis was at age 18 when they had to remove a huge tumor that took up 80% of his colon. After his second diagnosis at age 35, he tested positive for Lynch's Syndrome. We have a 6 year old little girl and an 11 year old son who need to be tested. I would like to go ahead and have them tested so that we can start being preventative if need be. Our genetics doc at UAB told us that it is not ethical. Why not be safe? My husband had colon cancer at age 18 and there is no telling how long it had been growing. If I can prevent my children from dealing with cancer, I want to start now and do what it takes. I am looking into getting a second opinion or finding a hospital that will be willing to test my children now. I have read too many stories of children that are the same age as my children dying before a parent finding out that Lynch Syndrome was a factor. I can't let that happen to my kids! Does anyone know of such a hospital that will test this young? I need peace of mind that they are not dealing with this and if they are, I need to be sure that we are doing everything in our power to prevent cancer and catch it early.
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