Living with PKD Community Group
This group is intended to share ways people are living with PKD.
Hi, I am Mark,DJ~EZ(e), Found out I had PKD back in 2011 after passing a Whopper of all whoppers of a kidney stone (yea 4 me :) then had a U.T scan doe of my kidneys...
Anyhow, found this groups about a month or so ago after looking on line for a while and sorta deciding what group to join, right well, I have Stage 1, saw the Neph Dr. today and said all is normal... he also asked me How I knew I had PKD, and told him I got it from my fathers side, who is no longer with us... I asked the Dr. how or what can I do to help my Kidneys, he said just keep doing what I am dong (in lose words), he also said, I should Cut out the following:
Red meat (** which i have be doing),
Cut down on my portions of meat intake in General.
Potatoes
Salt (**)
Cut out Soda, Cut out 90% of Soda and only drink 7 up/Sprite/Serra mist (No Coke or Dark Soda's
(Ginga-ale once in a while)
I then asked, what about drinking more water would this help in anyway?
drinking more water, is an old wives tail, he said in more or less words
huh? need a Myth-buster Dr on this one.....
I have also been on the following:
What kind of treatments has the patient received?
A.M. Treatment:
-------------------
Calcium Citrate (x2), Anti Acid reflux (x1).
also Take (OTC): Mens one-a-day (x1), Omega_ 3 fish oil (Capsules x2).
Home Made Water Enhancer:
1. Cut up Fresh Whole Real Lemon into 1/4's cuts and stab with folk)
2. Add the lemon cuts, to a one Gal container, and fill it with Filtered water and keep Refrigerated.
3. I use a 500 ml bottle and add 1 1/4 drops of the Orange Cursh water enhancer.
Questions:
Alcohol ?
I don't drink that much at all maybe the odd one or 3 over the weekends, but during the weekdays/night I don't drink anything Alcohol. is this a good or a bad thing to be mixing Alcohol + PKD?
Why potatoes?
I use to love a good jacket-potato in water, in a bowl and poke it in the microwave for 15 mins or so, take it out slit it down the middle like an American football and add a bit of butter+Chives+bacon bitz and a tad of Sour cream... yum... (Cry)...
anyhow, Don't mind me, I am an open minded and down the earth sorta person, i got to be, I am a DJ :)
looking forward to reading some replays and making some new Friends, perhaps...
Thanks all
God Bless
E~z(e).
Anyhow, found this groups about a month or so ago after looking on line for a while and sorta deciding what group to join, right well, I have Stage 1, saw the Neph Dr. today and said all is normal... he also asked me How I knew I had PKD, and told him I got it from my fathers side, who is no longer with us... I asked the Dr. how or what can I do to help my Kidneys, he said just keep doing what I am dong (in lose words), he also said, I should Cut out the following:
Red meat (** which i have be doing),
Cut down on my portions of meat intake in General.
Potatoes
Salt (**)
Cut out Soda, Cut out 90% of Soda and only drink 7 up/Sprite/Serra mist (No Coke or Dark Soda's
(Ginga-ale once in a while)
I then asked, what about drinking more water would this help in anyway?
drinking more water, is an old wives tail, he said in more or less words
huh? need a Myth-buster Dr on this one.....
I have also been on the following:
What kind of treatments has the patient received?
A.M. Treatment:
-------------------
Calcium Citrate (x2), Anti Acid reflux (x1).
also Take (OTC): Mens one-a-day (x1), Omega_ 3 fish oil (Capsules x2).
Home Made Water Enhancer:
1. Cut up Fresh Whole Real Lemon into 1/4's cuts and stab with folk)
2. Add the lemon cuts, to a one Gal container, and fill it with Filtered water and keep Refrigerated.
3. I use a 500 ml bottle and add 1 1/4 drops of the Orange Cursh water enhancer.
Questions:
Alcohol ?
I don't drink that much at all maybe the odd one or 3 over the weekends, but during the weekdays/night I don't drink anything Alcohol. is this a good or a bad thing to be mixing Alcohol + PKD?
Why potatoes?
I use to love a good jacket-potato in water, in a bowl and poke it in the microwave for 15 mins or so, take it out slit it down the middle like an American football and add a bit of butter+Chives+bacon bitz and a tad of Sour cream... yum... (Cry)...
anyhow, Don't mind me, I am an open minded and down the earth sorta person, i got to be, I am a DJ :)
looking forward to reading some replays and making some new Friends, perhaps...
Thanks all
God Bless
E~z(e).
ntwalker
hi I'm new to this site, actually I'm new to any kind of help site. I've known about my pkd for 30 years now was diagnosed in my 20's I'm 53 now. drinking water is important try to drink a gallon or more a day if you can. i did basically everything i wanted to do in my life up until a couple years ago. do what you would normally do just try to moderate your intake of salts and laying off th soda would be god. the alcholol isn't a big factor as it is filtered through your liver not your kidney. take tylonol instead of advil. try looking up what medicines are filtered through your kidneys and try to avoid those.
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