This group is designed for those who have NF, family members with NF or if you have friends with NF. We are all here to support each other like one big FAMILY.
Where is everyone???? I changed the topic line on my post bout this website.... I hope more will join us! I love the fact that there are so many groups in one spot! I told my bipolar depression bout this site. Don't know if anyone has joined or not. But I think it is wonderful thanks Kim for making this forum for us! Veggie thanks for geting the name right for me..... I was out of it and not paying attention to my typing.... Hugs Bitty AKA Ruthy PS Veggie check out my Glamor shots thread. Someone said I look like a teenager??? Me, I am 38 yrs old.......; Did I just says that??? LOL
I think everyone is still trying to figure this out. I have been on here awhile now and still learning things :) We just need to remind ppl we are here
its real simple to add a friend.
click on their name below their profile pic.
their profile will come up.
you will see
add as a friend
send a message
or
give a hug
click on add as a friend.
they will have to accept you as a friend before you will be added \
hope this info helps.
Hello my name is Sharon I live in Lancaster County Pa... I am 42 single mother of 4 ( my ex walked out on us), 2 of my children have NF also. The Dr's told my parents (1976) I had NF at the age of nine when they also told them I had Scoliosis... My dad his brother and his father all had NF... My dad told my mom he didn't know what the cauf-au-lait spots or bumps all over his body was when they met and got married! I started to get the cauf-au-lait spots around the age of 6months old, didn't start to get the bumps until I became pregnant with my first. And got more with each pregnancy.
I had surgery on my spine @ the age of 10. I now have a meningocele, they discovered that in 2005 on my spine. And in 2007 they found a tumor in my stomach called GIST. Had Surgery on that when they found it!
Well I have a myspace and an on line blog if you want the addresses send me a message...
hi all my name is Julie im 42 im from Peoria Illl i have 2 kids and one grandson i found out i had ni i.if at about 3 ye.ars old i had a optic gleomia Ihad. my rightr eye removed when I was 13 i surgery for a brain tumor in 85 im starting to get more tumors now.im doing wellhope to meet some good friends here
hello, i'm e...i'm the only one on my family diagnosed with NF2...i had tumors removed that were blocking my spinal fluid on nov 1 2010..i suffer from chronic pain and am doing physical therapy 5 x a week
Well I'm Shelbi. I have NF1 along with ALOT of other health issues.. If you would like to know please fell free to ask or read my About me in my profile it's just a lot to type over and over again. I'm just looking for someone or people who know the pain I feel and understand a bout NF1 because I haven't really met a lot of people who have it or even know about it. I have a email and Facebook if anyone would like to add me or email me just send me a message on here. Thank you all so much and everyone have a good day .
click on their name below their profile pic.
their profile will come up.
you will see
add as a friend
send a message
or
give a hug
click on add as a friend.
they will have to accept you as a friend before you will be added \
hope this info helps.
I had surgery on my spine @ the age of 10. I now have a meningocele, they discovered that in 2005 on my spine. And in 2007 they found a tumor in my stomach called GIST. Had Surgery on that when they found it!
Well I have a myspace and an on line blog if you want the addresses send me a message...