Yes!
sometimes the coincidences here startle me.
I was just yesterday trying to remember who/where I'd heard this discussed.
I get several weird nerve sensations..hot/cold where there isn't.

Now I get sensations of wet suddenly.
Or...feeling like something is touching me when there's nothing.

The oddest is not being able to figure out where a limb is without looking.
I can't even begin to describe that if you haven't felt it.

The cold wet...
In my mind..a big insect would feel like that.
Have no science to back that..just what I feel.
So..
When I suddenly feel cold/wet on top of my foot....
Have I ever mentioned my extreme bug phobia?
And..that I've moved to bug central.
( I've seen insects since I moved to Arkansas that used to only exist in my nightmares :-)
Anyway..so..yeh..the cold/wet on top of my food leads to some comical moves on my part..:-) :-)

Funny you brought this up, as I was just thinking about it.
That happens a lot here.

Hey..maybe we ARE magic..:-) :-)

here is one more.
whenever i sleep for more than about two hours the weirdest thing happens.
my right thumb locks up at the big joint.
not unmovable but gotta fortce it past that tendon snap yaknow?
last about an hour or so thataway....then is standard again.
i do one more trick in my sleep every nite too.
i don't think either of these things are magic though.
peace
t

I hear you both! Hate that wet feeling! Hate it even more when I find I have actually wet my fucking self! Horrific! Sometimes I don't even know until I feel it on my inner ankle!!! Due numbness cumming and going!

So humiliating!

The thumb thing is now my whole hand at times! I have to wake my husband to get him to move my hand as its so heavy I can't lift it. Thank God it doesn't happen a lot!

Hot electric shocks that spasm my body and lift it off the bed slightly! That's real strange. Really hurts!

CP SUCKS. I LOVE this place where you guys understand, now I'm crying, but happy tears, I'm just exhausted and grateful I've got you as friends to come to. Thanks. I'm sorry for your pain, I really am. X

love you Shoes

He He.... Dang,.... I have been having that stepping in a puddle water, or a bleeding type nerve feeling too....... 8-) ..... especially when the edema is playing unfair.... and with the edema, when I move my feet they vibrate , slosh around like a water balloon inside my foot from all the fluid build up.. but it doesn't really move I think...

Hmmmmmmm...... I would be classed as a reject in the restaurant , Frog Leg industry..... 8-)

N Yep,... that looking for a limb thing, I have almost every morning when I wake up especially my arms... left being the worst... sometimes it's that numb? I have to carry it with the right until it becomes "alive" again , absolutely no power, feeling in the arm, till the blood flows, Then it just hurts.... grrrr...... What a perfect way to describe it JC... looking for a limb 8-). x

Yaaaay,.... we're all weird and totally Love you guys..... Heaps...

RSD?

My dear friends, I love you all! Sending out a special prayer for you;
May you be filled with loving kindness.
May you be well.
May you be peaceful and at ease.
May you be happy and free from suffering.
It's an ancient Tibetan Buddhist blessing. It's supposed to be said three times or more, for yourself, for someone you care about, and for an enemy or a stranger.

The comfort of knowing you are not alone or just loosing one's mind. I get the water running or wet feeling often. On the right right side which is my bad side for spine issues. Finding the limb...hand when I get out of bed or it wakes me up because it is dead. Right side.

Hiero what a beautiful blessing.

I love you all dearly.

Todd, I believe YOU ARE MAGIC!

Just, look at all the wonderfull souls you help to share their "load"... It all helps, like Hippy said, just knowing its part od CP and we are Sane! Xxxxx

i just can't seem to get out of the whirlwind this year(plus)
been the most frustrating time of my life.
just.....everythings gone fuckered.
with every single crawlin inch.......just been so beyond anything i can do.
i've never been so......geez.so everythingthat'sbadrunalltogetherandmashmeintotherockymudofthisIronRoad..........i Can't............Get...........A............Grip(i know what you're thinkin JC).
but One Thing on this earth is constant for me
it is a singular thing made of many parts.
the one thing is the Peace here.
the firm grip of loving hands.reaching down to haul up on the flailing limbs of a brother/sister down and thrashin.
the knowing eyes that look upon the afflictions of their friends....in the deep mire with understanding, with expereience and knowlegde......because those eyes see it in their own lives.
the compassion...which is the hallmark of TRUE Friendship.
the willingness to take the precious time to to look at and consider the current problems of their brethren............and the fuckin Stones to hurt themselves......physically....and emotionally to offer what they can by way of help. be it in depth scientific knowledge of a condition.. or "my experience and here is what helped me". or the seemingly simple but actually heavy loaded"i know where you're at and i'm with you"......time given in prayer/positive energy/healing thoughts.........the .............the pure and honest
nonjudgemental......simpleass CARING.........and offering of oneself.........in the midst of their own agonies
and miseries..........fears and depressions...........in the midst of all the fucked up shit that is being ......survived.....at great cost..........and STILL.........ALWAYS.....even though this is the Iron Road..........the road that EXISTS to thrash and shatter........even....no.ESPECIALLY here.....because of all those things i so inadequately expressed about you ........when the falls come......here they are gentle.the body and the mind are joined.....in the soul.....mine are anyhow. my body is at war with itself. my mind is developing some fearsome cracks.....but here.....with you.....my soul feels Peace.
most of you know how i feel about that word.
i (mis)spent a good deal of my life at severe odds with Peace.
for whatever reason....in the last few years it has become my life mission to ,not only find it, but to share it out whereevr i can.
well....Peace is big.
i've spent most of a lifetime breakin it in one way or another.
i rejected it for so long......and with such violence.......i thought i'd never see it again.
nor recognize it if i did.
...............................................found some :) ............not all of it..............but more than i thought possible.
it just .......settles on me.............and it's here.....on this iron road...this road of pain and fear and suffering beyond measure that i find my measure of Peace.
i always figured my demise would be one or another sort of "Death By Irony......i'm appreciating here the irony of life. i chose for so many years a path of violence and destruction.....a house of Death. then Jesus gave me LIFE.....and through that .......This Life......i found a place of understanding..a place of friendship offerd...friendship given...friendship received........a place of PEACE.
that place is here
the reason is YOU.
reading the responses here......the comeraderie..........the fellowship...the goodwill for others at the expense to oneself...........YOU..........HERE.
you guys constantly amaze me...........each and all.
i don't deserve you.............but i'm tryin.
you are my role models
my inspiration.
i'm a grownass man with an extreme talent for violent destruction.
yet i come here.........and i weep.
but....not wantin to be cliche but doin it anyway......the tears are tears of joy.
i have a feelin this response has got off track and rambly...........but it just poured out.
i came on here thrashed......just gonna look through and see how youAll are gettin on.
this typin has really got me nearly bawlin but ........it just came out.couldn't stop.
i hope it makes some sense.
i've been fallin hard.....harder than usual since late 2012. i am fucked up.
still fallin
don't know when it'll stop
or if.
but when i get here....with you guys..........the fallin.....is gentle.
i don't know what it is about this particular group of people.
but you are......the most important group of people in my life.

thankyou................and.....................PEACE ;)
t

I love the way you write. I understand how you are feeling. Writing is good for the soul my friend......let if flow. We are here for you.
Love you x

T..
Isn't it an amazing experience to learn the many layers of each other here?
I wish that pain had never come to stay with each of us..
One of the very few good things to come out of it has been getting to know you all.

I know last year..Hell..the last couple of years..
Have been ass-kickers for you.
Hold on.

Love you guys.