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LDN .. Low Dose Naltrexone 3.0 MG or 4.5 MG ...... Helps ALL AutoImmune diseases not just MS

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WaitingForRelief 11/25/2016

Hello. After many years of chronic pain that only gets worse and worse, I finally have been diagnosed with rheumatoid arthritis last month. My doctor of course tried to put me on the toxic drugs right away. I refused and decided to give LDN a try first after learning about it while searching for "safe RA treatments".

Since my doctors wouldn't even consider the LDN, I've been on my own since they basically dropped me as a patient. After an extensive search, I finally found an online doctor who was willing to prescribe me LDN. I began on 1.5mg about 5 weeks ago, and worked my way up to 3mg about 2 weeks ago.

While I do feel a tiny bit less lethargic, the LDN isn't helping with my pain at all. I'm beginning to lose hope. Can anyone please share their experience in how long LDN took to start working? Should I up my dose to 4.5mg or wait? I've read where it can take some time for LDN to work, especially for RA sufferers, but nothing definitive.

My concern with upping the dosage to 4.5mg is that even if it does start working in that higher dose, it seems I will have nowhere to go from there because from what I've read LDN (like any drug), will eventually require a higher and higher dose after the body becomes conditioned.

Anyway... and insight would be great. I'd ask my doctor, but again... they won't help since I didn't go the route of the toxic drugs like Methotrexate. I figure I'd at least try a drug that helps regulate my immune system before a lifelong commitment to a drug that suppresses my immune system. Thank you.

davidrn 03/05/2017

I dropped off my Embrel and Methotrexate about 2 years ago, to try using LDN in its place. I wish I could give you a positive response, but I gave it 13 months, and used Prednisone with the LDN for pain. As I understand it, up to 5mg of Prednisone is not immunosuppresive. I changed from a traditional Rheumatologist to a functional Rheumatologists. She agreed with me, that the LDN experiment had failed in my case, so I went back on Embrel and Mtx. However, she wanted me to continue taking the LDN, even though I am immunosuppressed, she told me "it seems counter intuitive, but I have more than a few patients who are helped by taking the LDN with traditional RA meds. This past fall, I decided to get a medical marijuanna card (legal for meds in my state) and I take a dropper full of a tincture at bedtime. Helps with sleep and next week I will see how it helped my CRP (C Reactive Protein) (monitors inflammation). Sorry couldn't help with support, but RA seems to be an ongoing battle for us all. The rare person who finds a drug that works for a decade or longer is blessed.

davidrn 10/07/2017

A quick follow up, my CRP was as high as 65 (when I was off traditional RA meds) and just using LDN. It dropped after a year, back on Embrel and methotrexate to 4.5, I was thrilled a few months ago that it came down to 0.2. There are several reasons this could happen, my Embrel is working better, the LDN is helping, or the medical marijuana is lowering the inflammation. (I have continued with a CBD stronger tincture at bedtime).

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