Huntington's Disease Support Group
Huntington's disease (HD), formerly known as Huntington's chorea, is a rare inherited genetic disorder characterized by abnormal body movements called chorea, and a reduction of various mental abilities. The symptoms of Huntington's disease occur gradually over time - there is no sudden loss of abilities and it is hard to determine when symptoms initially occur.
I need some support, Nobody in my family suffers from HD but my best friend recently told me that his father has it and that he himself has a 50% chance of getting it.. I'm so scared and worried for him and don't know how to process this information considering I just lost my father..
On my Dad's side, there are 15 children. There was only one girl!!! No, they did not have children until they got the girl. Sometimes I think they just wanted farm hands. Not really. We just have a BIG and loving group.
The disease is hereditary and can be mortal. The affects led to the body shutting down and giving up. I have seen it in many of my uncles and now see it in many of my cousins.
I have learned one thing, though, never forget there is a person inside there. They may be locked away and unable to get their thoughts across the way they want to, but they are there. Don't give up on them because they need you to be supportive!! They need you to continue to love them.
Tell your friend I'll keep him in my prayers. And you to as you learn to deal with him.
We are among the few, but we still count!!