i am truly genuinely sorry for all you have gone through sounds like you caught more than your share of medical issues ,, i am hoping you will come and vent and get support,, I am a 2 time breast cancer surivor I relate to pain after my mascectomy ,, had 2 many biopsies 6 surgeries on one side 5 on the other but I am here thirteen years later to talk about it ,, I am here for you as I am sure many here can relate to some form of pain be in emotional physical or combo I am here we all are so come anytime ,,,, so glad to see you I really have you in my thoughts for a healing of some sort ,,, I tried many things but was mostly life It has been rocky at times and now getting older has its challenges I truly learned I have only one 24 hours how ever I can spend it,, I hope you have other support and if you dont maybe others can help ,,,, DS has so many rooms for everything from cancer to well what ever but we in our community have all that and then some dont we,,, hang in there hugs bmw

This really sucks! However I do know to some degree to what you are going through. I had a 7-9/10 migraine 24/7 for 8 months. I was in hospital for over 2 weeks getting all the different types of tests you said and was tried on all different types of medication. Fortunately I had good drs who did the lumber puncture who didn't screw that test up. They dx a lesion on the right facial nerve but said that wasn't causing the migraines. After a visit to a neuro-surgeon and multiple trips to my neurologist the last thing my neurologist told me was the last thing he could think of was a high dose of oxygen treatment but other than that he was out of ideas. So I really didn't pay attention to the oxygen treatment. Im not sure how open you are to God but really the only way that my migraines stopped was through the power of prayer. I was on several strong pain medications and nothing stopped the pain so for me I know it was prayer.

Keeping you in my thoughts and prayers

that is bad...doctors are supposed to help but sometimes they can't themselves diagnose what the problem is...in this age and technology it's sad that u had to go thru all this...i have suffered from serious migranes since i was 13 and i was not diagnosed until I was 25 years old...it took them so long...i suffered almost 3-4 times a week and it was horrible...felt like eternity...
i hope that u get better soon...and please continue to share..

I wanted to update you all. I saw my neurologist Tuesday. She had no idea what to do about my head. I told her about the issues with my back from the lumbar puncture and she said it should not hurt at all any more. She looked at my back and there was a bump and swelling there that should not be there. She had me do a few tests, such as my reflexes (right knee the reflex was not as good as usual), leg strength (right leg I could not hold up against pressure), and had me walk. The walking was fine, but when she told me to try walking on my tip toes I fell over. She thinks there may be a blood pocket or something wrong in my spine or muscles or nerves around it, and now I have to go to get an MRI with contrast this Sunday.

There is good news though. Yesterday I went to the pain clinic I usually go to for my nerve disorder and back pain. They did not want to touch my back until my neurologist was done trying to help, but I also told them about my head. I told them that my headache was at that point there for 42 days. I said that my head hurt, pressure on my head helps, hitting my head helped (weird I know but it focused the pain for a while so it didn't hurt so much), and strong scents helped a lot. The doc asked if they had tried a simple procedure and I told him no. He put lidocaine gel on a long q-tip (the wood stick ones docs use) and stuck one in each nostril, all the way up to my forehead. He left them up there for 15 minutes. When he took it out my headache was GONE. Completely gone. For the first time in 42 days my head didn't hurt. It has been almost 24 hours sense the procedure and it still does not hurt. He told me it can reset issues like that. Your brain gets so used to the pain that it thinks it is normal and keeps it that way, but if you can shut off the pain for long enough it may help your brain realize that the pain is not correct and reset the brain so that the pain is no longer there. He also said if the pain came back I can walk into his office and he will do it again. If it helps the second time he will teach me how to do it myself so I can stay out of pain.

Thanks BMW. I am sorry about your issues, and I really appreciate your support.

Thanks tyzz27. I am sorry that you were in pain so long. That is horrid. Maybe if it happens again the thing they did for me may help you, but I am glad it did go away. I am not all that open to the god stuff (really, why would an all powerful being who is supposed to love every person he creates make a 12 year old have a stroke, aneurism pop, brain surgery to fix the aneurism that left me partially blind, with seizures, and a lot more medical issues, plus an abusive mother who did everything but sexual abuse, to the point sometimes I made her mad at me when she was mad at my brother so she would hit me and not him, so he never knew the abuse, even hitting my head not a year out of brain surgery). It is hard for me to believe in a god that is supposed to be all powerful and forgiving to do that to a child. But I am glad prayer helped you. Thanks for your support.

seemad, thanks for your support as well. I am sorry you were in pain for so long and they did not diagnose you, migraines are terrible. I will try to keep you all updated as time goes on.