Gastroparesis Community Group

Gastroparesis (Lazy Stomach), also called delayed gastric emptying, is a disorder in which the stomach takes too long to empty its contents. Gastroparesis occurs when the vagus nerve is damaged and the muscles of the stomach and intestines do not work normally. Food then moves slowly or stops moving through the digestive tract.

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Gastrointestinal System
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Hello, I am new on her and looking for some answer

Jeffbroc
Jeffbroc

Hi everyone,


   After about 6 months and multiple doctors and tests, I was just diagnosed with gastoperisis and SIBO. From what I read, these go hand in hand. The last 6 months have been hell and continues to be. I have felt horrible everyday. I am not one to complain and have a high threshold for pain. But having pain everyday wears you down physically and mentally. I finally found the right doctor at Temple in Philly. She has put me on Bentyl and I don't know if it is working. I like to look for long term solutions. From what I read, ther isn't one for this. Should I push for a gastric pacemaker. Is this something that will provide some relief? My insurance deductable has been met and rather not pay another next year. I want this reolved asap. I know how I sound, but its the way I think. I want things taken care of right away.


Any info would be appreciated.



Thanks


KadaH
KadaH
I do not know how severe your gastroparesis is, but ,while I have been sick almost everyday, mine is not bad enough for me to get a pacemaker. I was diagnosed at the Mayo Clinic and it was explained to me that you have to really be so debilitated that you can hardly function and cannot keep anything down. Now, having said that, I am taking a Canadian drug that was prescribed to me by my Mayo Doctor because I was unwilling to take Reglan due to its "black" box side effects. I would definitely investigate that before doing a pacemaker. Also, I have had to completely change my eating habits and, if, I don't want to get sick then I cannot cheat. The name of the Canadian drug is Domperidone. I hope that this helps.
Jeffbroc
Jeffbroc
Thank you. My doctor actually told me about Domperidone. I refuse to go on Reglan due to the same reason and my Dr. agreed. I am on Bentyl now but it just doesn't seem to do it for me. Thank for the info you provided. I changed my diet and it helped a little bit, but I am still experimenting. I notice that things that work for others may not work for me and vice versa. I am in pain every day and sometime all day. It tends to wear on you mentally. I can handle pain but its the constant pain that gets to me. I find it hard to accept everything that comes with this diagnosis. Its the mental part of it that is hard. I don't know if that makes sense. Thanks Again
MissSophie
MissSophie
Hi Jeffbroc,
Agree the pain is exhausting. For me what helps get the pain under control is no food. For the past 4 days I’ve been drinking Ensure, diluted Gatorade & Almond milk. Tried a smoothie but it was to much. See Dr in 2 weeks to discuss surgery to open the duct going into the colon from the stomach. My stomach does not empty almost at all. Like you tired of all the pain. Plus I’m hungry. This is a sucky disease. Feel better.
Jeffbroc
Jeffbroc
MissSophie,
I am sorry to hear what you are going through. Not that I am happy that you also have pain, but it is reassuring that I am not the only one. I wish you well at your Dr. appointment and hope you get some answers. I hope you feel better soon. Thanks for the info.