Fibromites Community Group
This group has been created for people who suffer from Arthritis, Depression, Lupus, IBS, - all o f which are the cling-a-longs to FIBROMYALGIA "fibro" and anyone else who might need someone to listen and in need of help. We welcome those with Chronic Fatigue Syndrome CFS and Multiple Sclerosis MS as well as any thing else you would like.
I noticed someone was talking about her sleep apnea I think and going to get a sleep study. The Dr. wants me to go get a sleep study and I keep putting it off. I don't know why. I'm afraid they are not going to see anything on that day even though I have a few sleep disorders it doesn't happen every night and knowing my luck nothing will happen when I go over there. I don't think I will be able to get to sleep either. I have a hard enough time with it but being somewhere else Im afraid I wont fall asleep and that misses the point. As far as sleep apnea I don't think I have this every night. At least it doesn't wake me up. Is that possible. I know I have it though because every now and again I will wake up gasping or not breathing over and over again in one single night. Its miserable! Every time I start to fall a sleep I wake right up not breathing.
I had blood tests done a while ago and it showed a high white blood cell count but they cant find an infection in me anywhere and it doesnt go away with antibiotics. If it does it will only be gone for a few days. Sometimes my blood test will show it elevated and then turn around and be normal. It will go back and forth like that. That has been happening now for a year and a half. I ended up in an ambulance one night for severe stomach pain and stayed in the hospital for a couple of days. They did all kinds of tests but other than a high white blood cell count they couldnt find anything. Does any one know whats going on with me? Has anyone had this happen to them? Thanks for any advise.
Ellen
I had blood tests done a while ago and it showed a high white blood cell count but they cant find an infection in me anywhere and it doesnt go away with antibiotics. If it does it will only be gone for a few days. Sometimes my blood test will show it elevated and then turn around and be normal. It will go back and forth like that. That has been happening now for a year and a half. I ended up in an ambulance one night for severe stomach pain and stayed in the hospital for a couple of days. They did all kinds of tests but other than a high white blood cell count they couldnt find anything. Does any one know whats going on with me? Has anyone had this happen to them? Thanks for any advise.
Ellen
I have sleep apnea. When you go for the test just explain to the person getting you hooked up for bed that you feel you have it some days and not others and what happens. I bet you have some every night (and don't realize it), but maybe some nights worse than others. Either way you might not be getting the stage 4 restorative sleep. Are you tired through the day and want to nap a lot. I know with fibro your tired, but this is can't keep your eyes open tired. Also, they told me it is quite common that people hardly sleep at all at the sleep study, but they don't need you to sleep all night to find a problem. I know of a couple of people who had to go back a second time because they didn't sleep at all the first and I was worried about it. I didn't sleep much, but evidently it was enough.
As for the high white blood cell count, I don't know what could cause that? Maybe someone else in the group does.
Hope I helped a little.
Hugs, Donna
DONE. I REMEMBER GOING FOR MINE, THAT WAS ALMOST 18 YRS AGO. FIRST HE SAID NO I DID NOT HAVE NARCOLEPTSY, AND THEN THROUGH MORE VISITS. HE STARTED WRITING FOR DIAGNOSED NARCOLEPTSY! WISH U LUCK MY FRIEND. HAVE U EVER THOUGHT ABOUT WRITING IN A JOURNAL ABOUT YOUR SLEEPING, THAT WAY WHEN U SEE YOUR DOCTOR, U CAN SHOW IT TO HIM? AS FOR YOUR WHITE BLOOD COUNT, SORRY I DON'T HAVE AN ANSWER FOR THAT.
HUGS NAE'