Hello and Welcome Tina ! It does take some time and hundreds of dr. visits , blood draws, xrays and MRIs before doctors can now it down to nothings wrong with you LOL. Sorry couldn't resist, but that's the story i had got for many years. I was Dxed with Fibro 4 years ago and knew nothing about it and my Dr. didn't either as he had no info for me.

Yes forums like these are very imformative and filled with helpful advice with easing fibro symptoms and SUPPORT emotionally. It is comforting to know that there are other people dealing with such a life changing and painful illness , to let us know we are not alone. Yes i know sounds terrible to think I might get some relief to find that others are in pain, tired beyond belief, stressed out and can't remember where they left their keys, kid , house or medication. LOL

Limits ??? Very hard to pin a quanitive value on each days energy reserve that's for sure.

Good advice take one day at a time ; for some like me a few hours at a time and deal with problems or even good events with a good plan and yes, don't worry about things unless they are life threatening ... we don't need the stress!

Welcome again and i hope your summer is nice to you.

Gentle hugs
Steve

Hello steva and thank you for your response. I was diagnosed in May so all this is fairly new to me. I am lucky in the fact that children are grown and on their own and hubby makes enough to support us, I can rest when needed and can plan my days according to how I feel.

It is comforting to know others are dealing with the same things and that it's not all in my head.

Hope you have a low pain day, Tina

Hi tina glad to hear you joined its an awful condition. I have had it for 7 yrs. I am 47 yrs old and just got married second time in december, my new husband very supportive and its great to be on a site like this which i just joined for support. Take care, Lisa

Hello Lisa I agree it is an awful condition but I am learning to take it one day at a time. My Hubby (been married 4 yrs) is very supportive and understanding which helps. Even with his support/understanding I don't think he fully knows what it is like, which is why this forum is good because others on here do know.

Gentle Hug, Tina

Tina i can tell you even though our husbands try to support us they are scared cuz they depend on us for so much. I have been married for 8 months but my hubby new going into it i had fibro/arthirits/ spine problems. I made my husband read about fibromyalgia and he was in shock and then felt bad. I dont need pitty just want to talk to others that have it and have people that dont no that its very real. God Bless, Lisa

It is comforting to me that you Tina and Lisa both have someone for support on a day to day hour to hour basis. I know they can't fully understand what we go through unless one has fibro also. But it good not to be all alone.

I am feeling so much better these days but i remeber the time when It was a great struggle.
My exwife sent my son to live with me just as i was beginning to have a super flare. He was a freshman in High school with problems.
I was missing so much work that my FMLA had run out and could not miss any more work without dissmissal. I was engaged to my fiance for about 3 years then she left me that christmas, she couldn't take the changes Fibro was doing to me.
The following 3 years I was bed ridden for months at a time and had no income or support, I lived of my savings and got by with the help of my parents and siblings.

I had been taking Phama drugs like oxycontin, tramdol and such but they didn't help and my dr fired me as he couldn't help me and left me with no medical support.

I was about at wits end when i started to use MMJ and things begain to get better and better . My health is returning to me a lot less pain and no IBS , No severe memory loss, but i still have fatigue it cuts out 8 hours of my day .

Last year I finanly got my disability and it has helped out finacially and emotionally.
Today I am able to live a life closer to what i had before the super fibro flare.

Still don't have a woman in my life so i am a bit lonesome, may be one day i will feel confident enough i can share a life with some one again.

God bless

I am also working on pacing. Today I pace at what I can do and not what I want to do. It is still very difficult. My mind says go do something and my body says go to bed. When I rest at 10 am and 2pm I am in not as much pain. it is so difficult to plan a day like this. the only one that loves the 10am and 2pm nap or nap time is our toy poodle. How sad before he would wait to go for a walk. Life sure changes.