Hi again, Dawn!
I had my first Lupron injection last Friday- July 11th.
So far so good.
I have heard the horror stories too and I was terrified to get the shot, but my options were pretty limited.
My gyne said most side effects are reported at the two month mark.
Feel free to email me anytime if you want support.

Hi,
I have had the lupron shot three times. I think that the side effects happened for me by about the 4-6 week mark each time. I LOVED the shot...it was the only time I have ever felt well. HOwever it was terriblly expensive...and I couldn't find any research on what it does to effect possible future fertility so I stopped it. The second time I was on it I was offerred the add-back therapy to help with the hot flashes and stuff. I wish I had just suffered thru the hot flashes, that weren't that horrible....as soon as I took the add-back therapy my pain came back and never went away. It has estrogen in it (even though I think it's just a little bit)...and my body can't tolerate any "added" estrogen to what it already has! SO I didn't like that. It's been over 18 mos since I last had a shot (I am now on Danazol) and I think I do have some effects from it. Like joint pain or muscle achiness for no reason. But with the endo pain I can hardly tell that stuff is even there!

Been through that twice now and both times helped termendously. I also added Chinese Herbs this time around and I really think that helped as well.

I have been on Zoladex which is another form of Lupron. I had monthly injections for 6 months. Unfortunately, in my case, it didn't take the pain away nor supress the growth of lesions. Endo continued to spread and my RE was quite surprised on how fast the lesions spread. It did slightly calcify the lesions. Of course I got all the menopausal side effects :o( I am the worst case scenario tho, so there is hope. As others posted they did have success :o)

I had the depo/lupron shot when I was 17 and I was on it for a year. I started taking it after my third lap surgery. I am now 21. It was very effective for me. My pain was considerably better. I was able to function in every day life again. The side effects weren't fun but I didn't really care. At that point I was willing to do whatever it took to help with the pain. I had horrible hot flashes, nausea, vomiting and worst of all I gained about 90 lbs. That weight may not have all been from the shot. I was also dealing with my parents divorce at the time. I wish all of you taking the shot the best of luck.

I have had one shot of lupron so far and not only is it expensive...it's just not helping me at all! It drives me insane...I'm twenty three dealing with severe endo with lupron which doesn't work and damn hot flashes like crazy! GRrrrr

Everyone is different! Dont give up until you have tried everything possible: surgery, lupron, danazol, bcp, and anything else you can think of...
You need to give every trial at least two weeks because it sometimes takes a little while for it to kick in or be the most effective, like Lupron. It is better than danazol (prelupron trials) for most people and has a whole page full of side effects less than danazol. so PLEASE give it a try! if it can help with your pain that would be great!!

Hi! I had all the side effects: Weight gain, hot flashes, joint pain and swelling. I can say that it shrunk the endo and took away my pain for a little bit but my cycles bacame unpredictable after taking it. I hope you have a positive experience with it.

Lupron is a temporary fix and it caused me to have side effects even tho ive been off of the drug for years....i still have hot flashes...joint muscle bone pain...migraine headaches....I do not think it should be used for Endo because it has done more harm to women than good its toxic and has paralyzed/ permanantly disabled women in different ways...Your only supposed to be on it a MAXIMUM of 6 months or 12 months with add back in a LIFETIME! My pain came back even worse after my completion of being on this drug for 2 years...i did not know about the maximum limit. If I would have known then what I know now I would have NEVER taken the drug. That being said You have to make your own decisions about this and choices. I only wish you the best and hope it works for you! I hope for you a pain free day! God Bless
Tiffany

i had pretty good luck with the lupron, i felt pretty well for awhile, although it didn't seem to have some of the long term help that my doctor thought it might. but i did have all the terrible side effects- night sweats i think were the worst. and my bone density went down. but it did help the pain a little. hope you have good luck with it.

I just got the shot last wednesday

I just started this shot for the first time about 2 weeks ago. I was very nervous for it, but i have been running out of options. I have been feeling pretty good.I have some mild pain and of course side effects from the shot itself, but i feel so much better now then i did before.

I also had the lupron and I did it for 6 months and it came back so we decided to do another 3 months and still no luck the dr decided to take my right ovary and then I went back and it spread to my lest one so I had a complete hysterctomy at 21