Encopresis and Fecal Incontinence Community Group

this group is for anyone with or is caring for anyone with Encopresis or Fecal Incontinence

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Gastrointestinal System
/ Encopresis and Fecal Incontinence Support Group

28 M New to Group - Bladder and Bowel Incontinence

coastersrock93
coastersrock93

Hello Everyone,


I am in other support groups online, but just found out about this website.


I am a 28 year old male who had a brain bleed after being born two months premature. I also developed Hydrocephalus from the brain bleed, where my fluid doesn't drain normally without the use of a shunt (tube from my brain to my bladder/pelvic area.) I was recently diagnosed with Autism and Tourette's syndrome two years ago. I also have developmental disabilities, learning disabilities, and nerve issues related to brain and spine damage from being premature.


These nerve, spine, and brain damages caused me to have problems with my bladder and bowels. I am very embarrassed to bring this up, but I also have issues with bedwetting and nighttime bowel incontinence, for which I have to wear Northshore Supreme diapers at night.



I also have problems with my brain not getting the signal to go to the bathroom until it's too late. I'm very embarrassed to mention this, but I have to wear something called GoodNites pull ups during days when my mind is "busy" or I'm in a place where I can't get to the bathroom easily. (setting timers helps, but I still have accidents if I'm in a busy situation.) I have accidents with my bladder and sometimes my bowels. I'm hoping no one will make fun of me for this.



I am hoping these groups can help me feel less alone and that I can share support to others as well.



 

Does anyone else in this group have autism, hydrocephalus, incontinence, social cue issues, learning disabilities, or had a brain bleed as a preemie like me? I feel like I'm alone, and the only one who has to wear diapers and GoodNites for my accidents.



I would appreciate any comments or advice and am grateful to have found these groups to help me.

 



Thanks everyone

marty230
marty230
Hello can I just say how awesome it is that your deciding to speak out about this. I can only imagine how hard it must be to have this to yourself only , even keeping it from the ones closest to you. I commend you for being a voice for so many other individuals going through these similar issues! It really just is so commendable and I thank you so much as my sons struggle with this and it’s freeing someone speaking openly about it! Thank u! God bless u
Brandie1970
Brandie1970
Well said Marty. Bowel incontinence even more so then loss of bladder control is especially humiliating and frustraiting. It helps to know others on here deal with similar issues. God bless.
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