EDS Physical and Financial Help Community Group
We are a group of people that share their experiences of what has worked for us and what hasn't while living with various forms of Ehlers-Danlos Syndrome. We discuss various types of physical therapy and meditation that help with pain management and symptom reduction. We discuss how we have received medical benefits and treatments, and which ones worked and...
hi I have been recently diagnosed and am in a bad way as I am in pain every day night, I am always tiered and feel very weak.. I have children and I feel like I'm letting them down.
is there any food/ vitamins that can help with energy?
Have a read about Magnesium. There is also a group on Facebook called The Turmeric Users Group. It had vet and medical admins in there. The paste recipe they give is easy to make and I find the paste helps my digestion and lifts my mood.
Digestive issues can be part of EDS, and if you're not absorbing nutrients properly, you could end up with some deficiencies.
If you have Dysautonomia, you may find that eating large meals, or eating carbs makes you tired (some even fall asleep straight after eating), so maybe you could have a look at that subject and see if you can find anything that helps?
You could also try eating smaller, regular meals/snacks.
Some of us also have lower than normal blood volume, so upping your fluid intake might help too - increase blood volume = increased oxygen in our bits and bobs.