CVID Female Issues Community Group
A place where CVID patients and supporters can discuss topics specific to women of all ages. (Women only please)
A place where CVID patients and supporters can discuss topics specific to women of all ages. (Women only please)
It sounds like you doctor is not helping matters. Try to find someone better, better yet, if you can, find a woman. In general, I think that they get it a little better.
At one point several years ago, I was getting them all of the time, much like you. They have subsided now that I have been on IVIG for 3 years and I rarely take antibiotics anymore unless it is an emergency. My doctor and I actually laughed our buts off once when I went into her office in desperation asking for antibiotics. She said 'no. Not until we find out exactly what we are dealing with, so you must have cultures done'. I was annoyed as hell and angry. She tried to explain what was going on and didn't hear a word of it because I was so pissed off. Finally, the ice broke when she said that she was putting into my history that 'she is addicted to antibiotics'. We both laughed are butts off. After she grew cultures I went on something for a short time, but ever since then I do not take any antibiotic or anti fungals unless it's completely necessary.
Sorry to go so far off track. Once you have gotten a full blown case of a yeast infection, the only thing that ever helped me was the diffucan. Your doctor is a sadist if he won't give you something that you know will help you.
Also, try to cut as much sugar from your diet as possible. Wear loose clothing if possible, and don't wear any pants when you go to bed. Shower don't bathe. It's always tempting to have a warm bath, but forget that for now. Most importantly, find a new Obgyn who will at least consider your CVID. I have found whatever the normal dosage is,I need 2 for it too work. Keep a backup of Difflucan and take it at the first tickle of infection. God, I wish I could help you more. There is no magic that I know of, but there are steps you can Oh, and there are books out there for the women that are constantly facing these infections. I'm sure that there is some information from the unnecesary suffering that we endure. Tap out your resources and find a new doctor I think. I know that is a big pain in the rear, but you just have to find a better one that communicates well in addition to listen and act based on your input.
Gotta run. Sorry about the length.
Keep us posted on your situation.
love, fezzy
Hope my doctors can find another gynecologist for me.
By the way, he said that he saw no increase in white blood cells under the microscope, that made me nervous because I know our blood doesn't do things that most doctors expect, and I'm not sure that I still produce white blood cells with an infection.
Thanks for all of your support! I'm feeling much better now, btw. :)
I have experienced a lot of issues with this as well. I found that once things get imbalanced it can be very hard to get things re-balanced again.
My doctor told me to avoid all soaps and stuff like baking soda when washing that area as it can cause pH imbalances. Also, it might be worth going into get a pap as they can test for BV (bacterial vaginosis) and also for yeast. I found that I would always get a yeast infection after being on amoxicylin, and then I would have to take oral antifungals... But then I would get BV right after.
My doctors have always told me to never douche and that it can cause infections.... but I'd be curious to see if it works! I sometimes doubt doctor's over faith in prescribed drugs. Also, have you tried seeing a Natropath (NOT a homeopath)? I have been seeing one over the last 2 years and she is great when it comes to helpful and effective alternatives.