i was diagnosed with CLL/SLL at the Mayo Clinic in Rochester, MN in Nov. Of 2009. I was 47 years old when diagnosed. I had stage 4 Lymphoma with CLL in my bone marrow and in my lymph nodes in my neck, armpits, and groin areas. My lymph nodes were positive for 17p deletion.
I have had over the years many adverse conditions. Multiple eye and ear infections, many mouth ulcers, many infections on the skin. And a basal cell as well. I had fevers that lasted "nonstop" for 3 weeks straight-this ended up being a CMV Virus. They thought for awhile it was Richter Transformation, thank god it wasn't.
On July 20, 2015 I started the drug Ibrutnib/Imbruvica. In Jan 2016 i woke up one morning and I had blood all over my pillow. My right ear was bleeding. I ended up with a significant hearing loss in that ear. In July of 2016 same bleeding issues with my ear but this time my left ear!! This time I was told I would benefit from hearing aides!!
In summer of 2016 I also had 2 more basil cell removed from my chest area that's a total of 3 basil cell-1 before starting Imbruvica and 2 after starting the medicine
I feel that my short term memory has gotten bad since I started taking Ibrutnib!!
Has anyone else experienced any one of the many bizarre symptoms I've spoken of from above?
Del13 Stage-2 - I'm experiencing headaches and some minor night sweats. I also, have diabetes. There are times where I don't know which is causing my symptoms, the diabetes or Cll. As-long-as I stay active, I feel pretty normal.
Regards,
Jimmy McMillan
Jimmy McMillan