Children of Parents with PD Community Group
My Mom has PD and I am her sole caregiver. I am here seeking support, advice, new treatment options, information and I thought this might help all of us "kids" who are looking to help their parent and themselves as this is a joint journey to some extent.
I talked to my dad about my mom's babbeling...
She has been doing it more and dad had her go to the doc.
The doc thinks she's having TIA's (mini strokes) but can't prove it without doing some tests. He tried to put her in some sort of scan where her head (brain) had to be in a tube and she freaked out. He's going to try again in about a week.
I want to go to "home" this weekend but, I have strep throat and running a fever so not sure if I'll be feeling better by Saturday or not.
She has been doing it more and dad had her go to the doc.
The doc thinks she's having TIA's (mini strokes) but can't prove it without doing some tests. He tried to put her in some sort of scan where her head (brain) had to be in a tube and she freaked out. He's going to try again in about a week.
I want to go to "home" this weekend but, I have strep throat and running a fever so not sure if I'll be feeling better by Saturday or not.
if you are a community leader and can delete this, please just do. no one reads it and replys anyhow. thanks.
I am sorry we have not responded. The leader's Mom is very ill, and I'm the backup and my Dad has been worse since 4th of July and was just hospitalized beginning 8/1.
I will talk to the founder and then, if she agrees, to DS about taking down this site because we can't support it any more and we don't want to give people false hope.
In the meantime, I highly recommend the regular Parkinson's board and also the different boards for dealing with aging parents, with dementia, etc.
All the best to you, with deep apologies for letting you down,
Bridges
I'm sorry to hear about all the parent loss and struggle...
Thanks for your response
BT
i'll survive
Hang in there!
I've had some unexpected events arise in my life and have not been on DailyStrength as I regularly as previously. I did, however, respond to a prior discussion(s) of BT's re: her mother's confusion but that was the end of the discussion. So, BT, I did read your posting and I also did respond in an effort to help. I see now as I logged in for the first time in a couple or more weeks that the subject-matter of BT's mother has been continued but as completely new discussions. Also, BT, we have exchanged several of e-mails in which I also tried to be of help and support.
Anyway, it would be my suggestion to shut down this site which people seem to have some difficulty finding and opening a new one that can be easily accessed like other sites such as the main PD site by scrolling down the list of support groups. If it bears the name "Parkinson's Disease - Forum For Family Members of A Person With PD" then it should appear in the list right after the regular/main "Parkinson's Disease" group. If the site is easier to find by newcomers, there will probably be more activity. As long as the site is so difficult to find, few people will post discussions and comments to discussions. As for me personally, I somehow stumbled on it by accident not to long ago after I had already been a member of the main PD group for more than a year.
I agree with Bridges -- posting on the main PD site is a good option for quicker responses from more people, especially until a new, more visible and more active site can be started.
Wishing all a nice remainder of the weekend and a good (or better) week ahead.