I live in the Isle of Man and 2 weeks ago I was airlifted to the Walton centre in Liverpool uk, where I was diagnosed with CM, my only symptoms were a stiff neck and slight headache. It turns out that my CM was blocking my CSF fluid draining from my brain, they didn't want to do the decompression op so fitted me with a VP shunt to drain the fluid. Has anyone else had this op for a CM?
Thanks aimee :)
I've been "sick" (as much as I hate to use that word) for the last 12 years. There's been one diagnosis after another, but they've all eventually been disproven and I'm just left with a host of debilitating symptoms that can't be explained. All of my specialists are agreement that there's definitely something physically wrong that's causing all of my symptoms, but they just haven't been able to...
The Mayo Clinic is obviously world renowned, but I've heard many mixed reviews regarding their ability/willingness to diagnose and treat Chiari, Ehlers-Danos III - Hypermobility, and Craniocervical Instability (CCI). Some people say Mayo is great at evaluating these conditions and others say they're not. I've also heard some say that Rochester is good, but Jacksonville is not. Does anyone have...