Hello..I was newly diagnosed with Chiari at 42yrs old about 3 weeks ago. I was taken by ambulance to the hospital because the nurses I work with thought I was having a stroke. I stood up from charting and my head began throbbing like it was going to explode and I felt so much pressure in my head. I made it to the nurses station and they had me sit down. I couldn’t feel my lips, tongue, and I couldn’t talk. 911 was called. When paramedics arrived, I felt like I couldn’t get out of the chair to get on gurney. I was able to with assistance. My bp was through the roof and I was shaking all over. Ct scan was negative and I was almost discharged until another doc came in and wanted an mri. The Chiari was found and is 6mm. I was dx with it along with TIA and hypertension. I was discharged the next day or two and was referred to a neurosurgeon. I had to go to my PCP first and she was certain that my symptoms were from the Chiari..looking back I had another episode exactly the same as this one about 5 years ago..then 3 more episodes similar(head throbbing and extremely high bp) sending me to ER where I was treated for “migraines” although I had never had migraines and no family hx. I have had 3 CT scans in the past because of my bp being so high, they wanted to rule out aneurysm. The neurosurgeon I was referred to showed me on fil where the crowding was and how it is pressing on brain mainstem..then he said no way is the Chiari the cause of my headaches, HR, ringing ears, and bp issues(my bp sky rockets 160’s/110ish when I’m up walking and is super super low when lying down.) Hr in the 50’s when lying down..up around 110 while walking now. I’m not having a lot of pain, just a little stiffness in my neck but I’m not even able to work right now because my bp is so crazy and all over the place. I have learned when I’m walking if the throbbing starts I can sit down and my bp immediately drops to a normal reading almost instantly..So back to my PCP and now she’s referred me to a cardiologist