Hello all! I'm so excited to have found this group with recent posts too! I just found out in early May by sheer accident and the grace of God that I have a chiari malformation with syrinx. My symptoms probably started noticeably within the last several months, but symptoms have rapidly progressed since my initial MRI. I just had two MRIS done yesterday ofor my cervical and thorastic spine and my doctor said there's swelling?!?! I have to wait 2 months to see a neurologist... sadly, I'm a veteran, so that's what I get with the VA. I've only been told that I have this thing and nothing else... so I'm left to process this diagnosis all alone... well, with the help of google. My neck is stiff, I get charlie horse sensations in my foot and calf, I get tingly sensations in my arms, very weak and low energy, etc. My question... how long did you all have to wait for surgery or when was surgery recommended? I need a little reassurance I can last two months haha. The VA doesn't give a crap about symptoms, but I dont want to go to the ER if I don't need to. I want to hear stories and experiences!!!
I've been "sick" (as much as I hate to use that word) for the last 12 years. There's been one diagnosis after another, but they've all eventually been disproven and I'm just left with a host of debilitating symptoms that can't be explained. All of my specialists are agreement that there's definitely something physically wrong that's causing all of my symptoms, but they just haven't been able to...
Has anyone applied for disability and won or are they giving you the run around because they think its just headaches.