My name is Jawhara and I'm a 32 year old from Dubai, UAE. An orthopedic surgeon diagnosed with ACM a couple of years ago but a neurosurgeon disregarded my symptoms. When I was first diagnosed, it was 7mm. I had an MRI done around 3 weeks ago and it showed that the tonsils have descended to 1cm and it showed that there was some kind of fluid build up in the brain.
I got the recent MRI done because I've been having blurred vision, severe headaches where I feel like my brain is going to ooze out of my ears and my eyes are going to pop out, severe neck pain, and these strange muscle spasms but IN MY BRAIN and I see flashes of light when that happens. My doctor told me that he will have to do this procedure to measure the intracranial pressure and that I have to be hospitalized for 2 days. I am scared because I've been reading about the procedure and how it's done. Yesterday, my doctor prescribed Diomax and Zomig but I haven't taken any of them.
Has anyone gone through this procedure before? If yes, then please tell me what I should expect and how I should mentally prepare myself because I am seriously thinking of telling my doctor to not schedule the procedure and just ignore the symptoms.
Hi guys my name is Tabitha, I was diagnosed with Chiari type 1 about 4 years ago, I didn't have many symptoms back then other than pain and sporadic headaches... Within the last year the pain has gotten much worse
I've been "sick" (as much as I hate to use that word) for the last 12 years. There's been one diagnosis after another, but they've all eventually been disproven and I'm just left with a host of debilitating symptoms that can't be explained. All of my specialists are agreement that there's definitely something physically wrong that's causing all of my symptoms, but they just haven't been able to...