New Member to Group and New To Chiari Malformation
I was diagnosed with Chiari in March of this year. It took 5 years of headaches before I was given an MRI in order to find this diagnosis. I went to the Barrow Brain and Spine Institute yesterday and spoke to the neurosurgeon. According to him, the tonsils of my brain decend about 2.5 cm. He said that he is surprised I am not having trouble with fine motor skills right now. He has reccommended surgery, but my husband and I are still thinking about it and if I do decide on it, the surgery won't be until January or February of next year.
This is really scary for me because I don't know what to expect.
I just want to introduce myself and I can't wait to speak with you all!
I've been "sick" (as much as I hate to use that word) for the last 12 years. There's been one diagnosis after another, but they've all eventually been disproven and I'm just left with a host of debilitating symptoms that can't be explained. All of my specialists are agreement that there's definitely something physically wrong that's causing all of my symptoms, but they just haven't been able to...
The Mayo Clinic is obviously world renowned, but I've heard many mixed reviews regarding their ability/willingness to diagnose and treat Chiari, Ehlers-Danos III - Hypermobility, and Craniocervical Instability (CCI). Some people say Mayo is great at evaluating these conditions and others say they're not. I've also heard some say that Rochester is good, but Jacksonville is not. Does anyone have...