Hi. I was diagnosed about 2 weeks ago with Chiari 1. I work in helathcare and we are the absolute worst at ignoring symptoms. I have had headaches and dizziness for years and self managed.
In june I broke a rib (fell after being dizzy) and was taken out of work to heal.
But as i was home, which should be a great vacation (especially during the summer), I started feeling terrible: always tired, dizzy a lot, weakness, SOB, neck pain (thought i pulled a muscle cleaning- but it lasted over a month), severe crackling in my neck.
Finally I went to my PCP and had an MRI and labs. Labs came back great but this was found on MRI, along with basilar invagination and compression of the medulla and severe cranioclaudial compression, and I have been getting worse daily.
Im even afraid to sleep. Had the CINE scan and it shows no flow!!!
I see Neuro tomorrow and i am 99% certain i need to have surgery asap.
I am scared to death!!
If anyone can give me some postive feedback on their surgeries I would be incredibly grateful!!!!
I plan on keeping the blog posted on my appts and plans.
But I have never been this scared! I have had terrible neck and back pain, dizziness and severe anxiety. Does the surgery help all of this?
I appreciate anyone who can help me!!!
Thank you and good luck to everyone with this unfortunate illness!!
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