Arnold-Chiari Malformation Support Group

Arnold-Chiari malformation, sometimes referred to as 'Chiari malformation' or ACM, is a congenital anomaly of the brain. Arnold-Chiari Malformation II occurs in almost all children born with both spina bifida and hydrocephalus, but ACM I is typically seen in children and adults without spina bifida.

0 Online

what to expect

I was just diagnosed this month. Today I had an mri ro check my spine for cysts. The doctor said that's common with Chiari. He wants me to consult a surgeon in case surgery is needed. At what point do they usually perform surgery? What is recovery like? My current symptoms are daily headaches and some visual problems. I've lost my peripheral vision temporarily as well as having blurred vision, difficulty focusing my eyes and seeing squiggly lines. All help is appreciated. Thank you

Replies

pinkpony66
pinkpony66

If you have Facebook you should look for ASAP support group as they are much more active then here. If you choose surgery please only go to a chiari specialist. That is #1. There are many throughout the country and the ASAP group can guide you at least for evaluation.
Posts You May Be Interested In:
  • emmy16

    new here desperate for understanding

    So update.... OC was my DH. He hasn't been as awful over the past year since he was awarded full custody in January, it became affective June 1st, mom's mom gets liberal visitation since she raised her, mom is supposed to get supervised visits but doesn't take them, she's also facing felony charges right now but that's a whole different story.... anyway I'm so lost right now. We've been...
  • redsimom

    No Contact??

    Is anyone else in a situation where there is no contact?I figured if there was no child there would be no contact of course. So why does it matter that there is a child involved? It makes life complicated and messy but I feel a lot better knowing that he doesn't have any contact with her. That, in turn, helps my marriage and helps my children. She doesn't see it that way, but that is her problem....