Alpha-1 Antitrypsin Deficiency Support Group
Alpha 1-antitrypsin deficiency (A1AD or Alpha-1) is a genetic disorder caused by reduced levels of alpha 1-antitrypsin in the blood. It can lead to emphysema and, in some cases, to liver disease. Symptoms of alpha-1 antitrypsin deficiency include shortness of breath, recurring respiratory infections, or obstructive asthma that does not respond to treatment.
Hi All, Im new here. I was born with alpha-1 antitrypsin deficiency, PiZZ genotype.
I have cirrhosis because of the alpha-1 and I want to talk to others who have cirrhosis because of alpha-1 or others with cirrhosis or alpha-1.
I look forward to your kind replies.
I have cirrhosis because of the alpha-1 and I want to talk to others who have cirrhosis because of alpha-1 or others with cirrhosis or alpha-1.
I look forward to your kind replies.
Please be sure you're getting the basic information you need. A good place to start is the liver disease section of the Alpha-1 Foundation website: http://www.alpha-1foundation.org/alphas/?c=04-Alpha-1-Liver-Disease
Also, there is an email list for people with Alpha-1 liver disease:
http://home.ease.lsoft.com/scripts/wa.exe?A0=ALPHA-LIVER
And the Alpha-1 Association has a number of chat forums here, including one for those with Alpha-1 liver disease: http://www.alpha1.org/abb/
The Association also has a regular "virtual support group" for Alphas with liver disease. You look young in your photo; there might even be a group for young liver-affected Alphas. To check, contact Cathey Horsak, 1-877-346-3212 or horsak@alpha1.org
Best of luck,
Bob Campbell
Communictions Mgr
Alpha-1 Foundation