Adults living with CP Community Group
We are a support group for Adults living with Cerebral Palsy (CP) trying to find answer to help us on our daily journey.
We are a support group for Adults living with Cerebral Palsy (CP) trying to find answer to help us on our daily journey.
They originally wanted to an epidural injection but after talking to some other people who had them I decided against it and urged for the pump instead. I am currently on 20mg of oral Baclofen 3 times a day and so far its working pretty good. I am also on Valium for break through spasms and Tylenol #4... I can't wait for the trial and eventually the pump. A lot of the side-effects that I am experiencing are stomach related. I get nausea and constipated from the medication. As I told my doctor, the benefits are not worth the side-effects at this point and am ready to get off all if not most of the oral medication I am on. My doctor also told me that they can put a pain killer in the pump along with the Baclofen which makes me very excited.
The trial that I am taking part in is 3 day trial and will be taking place at a local hospital. I also have set up physical therapy and different tests while I am at the hospital to better find out what dose will work best for me.