Oh do I know how you feel. I have been suffering for 2 years but was told nothing was wrong. I also crashes very hard in July. I had to wait 5 months before I really had a diagnosis. I am a very active person and live for the outdoors. The only time I spend indoors is dinner and bed, and in the summer that's not always true. That all became nonexistent this summer due to the fatigue. I lived in my bed answering couldn't walk a mile without being exhausted. I had to muster all my strength to do my physically demanding outdoor job all week & even then it was not high performance. It sucked. It still does. I have been off of work 2 months (seasonal lay-off) & have been focusing each day on. Getting better. I have noticed several improvements!! I still have the crashes and get very frustrated ar how SLOW it is or how one little thing sets me back but I am focusing on the good. I know that feeling of not being able to visualize light at the end of the tunnel. I understand not bein able to communicate what is going on inside. I am still struggling in how to tell my supervisor when I return to work. People don't understand "stress." They don't understand hormones. They just label it as crazy. So frustrating!
Idk how to help you with communicating. I'm still trying. I will share what I have been doing that has helped me.

A ton of different supplements ad I'm sure you are on.

No sugar (only small amounts of fruit sugar), no alcohol, no caffeine, no dairy, no gluten.
Yes, I eat about every 3 hours.
I do yoga every morning. I try falling asleep to a guided meditation . Do meditation during the day when I am very bothered.
Write in a journal when something is wearing heavy on my mind and also record the improvements I notice every two weeks, even if subtle.
I have gone to a counselor twice to help as a support system and further eliminate stressors.
And I get outside every day. Even if it is just sitting outside, throwing a ball for my dog, short walks or what have you.
I read. I cook.
I have good hygiene and I try to talk or hang out with friends that are positive people.

I so so know what you are feeling. It was the worst feeling in the world. I often imagined that was what cancer felt like...Having the life sucked right out of you and soooo weak.

I was doing much better, but had a lot of mental and physical stress the last 2 weeks which sent me into a crash. I also wasn't coping with it very well. I'm inpatient and frustrated. I'm 27 and want to live the life I love, not be stuck inside exhausted while life passes me by. That is why I started looking for support groups. To find people who understood and had endured.

Stay strong. There is light out there.

I am here to listen and help as I can.
You will be helping me as well.

Hey! I also forgot to share--- Have you tried Teecino herbal coffee? There are different flavors to mimic the taste of actual coffee, of course it is not perfect, but it is the closest I have found so far. It is caffeine and acid free. Just real ingredients. Hope it helps!

Hi I have left a few posts today to try and help out. It took me 11 months to recover. I never would take hydrocortisone. It ruins the immune system which despite what the doctor's think they know (unless you have no cortisol left at all) is a huge reason why we are in this mess to begin with. We are not in anymore stress than other people, yet our adrenals got burned out. Ask, why is this? Could it be because we have hidden viruses that doctor's cannot find - which deplete nutrients and tax the adrenals. Add to this that we are all walking around malnourished anyways, and you have the perfect storm for chronic fatigue. If you want answers I recommend you find on youtube all videos by Dr. Randall Tent. He is the reason I have recovered, the information he knows. Him and my naturopath - both confirmed my suspicions that the root of our problem is hidden viruses and nutrient deficiencies. We are all slammed with toxins, heavy metals, nutrient difficiencies and viruses, we all have candida overgrowth now - the good bacteria that protects us is getting wiped out. Corticosteriods are part of the problem - they wipe out good bacteria - leads to candida overgrowth which keeps us from absorbing nutrients. So even if you are taking lots of supplements (97 percent of them are no good) they are not hardly absorbing anyway. That is why we continue to get crashes - until this is resolved the crashes continue. We must fix the gut with the right probiotics (Ohirras probiotics and lateroflora - the only ones that finally worked. Also we need to increase hydrofloric acid in the gut so we digest food - eat fiber to feed the good bacteria - fermented veggies. That is all I can say - we can recover but it required a lifestyle change for me. Was it worth it? Yes, for sure - to be able to walk now for days with no crashes - to become a productive member of society again, to feel GOOD again - yes!! I also had to stop eating all sugar (except a little raw honey, pure maple syrup), dairy, gluten, grains, corn, eggs (these foods all feed viruses). I eat less meat but still 4 ounces or so once a day. Juicing dark leafy greens was key and how the recovery really got kicked into gear. Even after I started this it took 2-3 months to really feel the effects - do not expect instant changes. It takes time to fix the nutritional deficiencies.

Please go to Dr. Lam.com
I understand what you are going through and finding the correct dr is the key. one who understands exactly what this is and how to treat it. It is a very delicate process that needs correct supervision. I do get it. I had a very severe crash 2 weeks ago and thought I could die so I know. I feel like I am in good hands. They have been wonderful and now I at least have a plan for recovering. Thinking of you and totally getting all that you are talking about.

Hello there I am very new just trying to figure how to post can you let me know if you see this on the site?

Hey there. New to the site. So tricky not as easy as it seems. Recently diagnosed. 2 Week ago. Trying to connect with someone that knows what this is like. Rockon

is anyone out there who can respond to me? numerous attempts still nothing guys. rockon