addisons disease Community Group

for people who suffer with this disease and for people who are intrested to learn about this rare disease.

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tlc0u 05/08/2014

Hello,

I just completed my first spit test, my last blood pressure was 98/68 which isn't too low, but considering I take some medications that increase my blood pressure, the Doc was a bit concerned. Other issues I have is low T3, Fibromyalgia and systemic edema. So far I was told to do a spit test, blood test for testosterone, add salt to my water to get my blood pressure a little higher and read a book for Adrenal Disease, while I wait the results. My Doc also wanted me to join a support group for Adrenal/Addison's Disease.

So, hello all :)

suzannelowery 01/26/2015

hello, i just recently joined and am hoping to hear what other people are doing to deal with the daily ups and downs. hope this finds you well

22Lynn 01/26/2015

I rarely check in because there is so little going on. It's much more active on the Addison's support group you find under Support Groups. There are tons of posts about living with this disease. Lots of tips for daily living with this disease.

One tip is to add salt when your BP is low. But we recommend drinking chicken broth or eating a chicken broth type soup, eating pretzels with lots of salt. One piece of cheese will give you 25% of your salt for the day.

A big topic we discuss is dosing schedules. How you take your steroids will really effect how good or bad you might be feeling. HC lasts 3-4 hours in your system. Prednisone I think is 5-6 hours. So you want your steroids to be able to cover you the full 24 hours and follow the rhythm that the cortisol would do.

There is also stress dosing, emergency injection kits, etc. There is a lot the doctors don't talk in depth about with their patients. This is a great site to get your questions answered.

I've had Addison's now for about 18 years. I hope you both feel welcome here.feel free to ask any questions you might have.

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