Barry, sorry to hear of your accident and how it has left you. I am guessing your pads are there mainly for possible leaks before you can be cathed or assisted with bowels.

I myself am bladder incontinent and now having issues with IBC (CIC) to where I am just the opposite when it comes to my bladder. My bladder lets go full force when it wants to, even if I have been cathed like 5 mins before. As for bowels, I am stopped/blocked but there are times that I have leaks because of it when I pass gas. Because of all this, I have to have good diapers all the time.

I do hope that your care givers are very supportive and gentle when they work with you.

I'm quadriplegic as well. I do have issues with spasms and seizures My bladder is flaccid and usually just drains as my body produces urine. Occasional flooding usually right after a seizure or spasms. I used to be able to maintain a bowel program as well. But after I had to resort to a feeding tube. That was out the window. With small amounts of watery bowel being released several times a day. And full blown bowel accidents several times a week. So light protection is no longer possible. We have had to resort to using full blown plastic backed overnight briefs 100% of the time.

How have You done with pressure sores ? I was lucky for many years. But I've developed and gotten through a couple in the last year. Do you wear and pressure sore protection and how often ?

The only time I have had a serious pressure sore on my bum (I have never had one anywhere else) was when I had cellulitis. A course of Clarithromycin cleared both but did have side effects - high blood pressure and pulse rate - but these returned to normal after 2 0r 3 weeks..
I have had minor pressure sores when something abnormal happened such as sleeping on a wet sheet when I had a catheter leak. Apart from that I have been free from pressure sores. The only protection I wear are inflatable plastic shoes overnight to prevent sores on my heels.
I find that 30mg Baclofen and 0.5mg Clarithromycin per day relieve spasms and seizures but I still have muscle tightness, mainly in the area that would be covered by a waistcoat.

Hi Barry. Hope You are doing well. I had a rough month But I think I'm back to normal whatever that is.

Hi Brandie,
I'm glad you are a little better. I have not changed much. I am thankful that my incontinence is not too much of a problem. It must be so depressing when an accident occurs - back or front - and also the uncertainty of whether it will happen again. My pad is changed as a matter of routine when getting up. It is also checked at the back each night by my carers when going to bed but has to be changed only about once every 3 or 4 weeks. I can't ever remember a leak at the front (but I have a nurse who likes to check it)
Good luck, Barry.

I hate the feeling of My caregivers or Husband. Having to check My brief. But with complete incontince and disability. Skin care is so important. To revent rashes and sores. I don't always have feeling down there. Sometimes I feel dizzy or I can feel My body but just the stiffness tremors and spasms. I can't really tell if I'm wet. Or worse. Sometimes I feel everything. But no control at all. I hate MS. At least this month I have no sores. The last 5 weeks was a nightmare. I had a pressue sore on My heel. And one on My back shoulder. Then a infection around My feeding tube port. At the same time I had a rash. So My nurse went back to the indwelling catheter. I still leaked a little. But it quickly helped. Of course I also quickly developed a UTI. With all the antibiotics and meds. So then My stomach was in a constant state of flux. Doing and feeling much better now. It was so nice yesterday. I actually got out in My wheelchair for a few hours. Shopping with My sister , daughter and caregiver.

I'm pleased to hear you enjoyed your shopping trip so much. It must be so nice to go out. Nitrofurantoin prevents UTIs and catheter blockages or me.
With best wishes, Barry