I sort of noticed that it has been a while since I wrote an update. I have contacted a lady here in the city who has Mito and knows of other families here with Mito. However that is as far as it has gone for now. I hope that things will change on that front soon. I have also contacted the Stroke Recovery Association here in the city. They refered me to the Heart and Stroke Association saying that they have connections to doctors and research grants. I will be going there next to try and spread the word and hopefully to contact more people with the disease. I left my name and number with Stroke Revovery in the hopes that if anybody with the disease will contact me if they need support.