Celiac Shopping List

Is Celiac Disease Substantially Underestimated?





Requires iOS 4.0 or later. Age Rating: 4+ App Guide Celiac disease is an auto-immune disorder of the small intestine. It is caused by a reaction to gluten protein found in wheat and similar proteins. This app helps you to eat better and reduce carbohydrate intake, or for sufferers of the condition looking to eliminate wheat-based products from their diet. The app gives you a comprehensive list of what to eat and what not to eat. It lists food to avoid from pasta to breads, and it lists the naturally good foods. It also outlines alternate options for foods on the list to avoid, so gluten-free pasta as a substitute for wheat-based spaghetti, for example. There is a place to read blogs and news articles and helpful tweets from reputable health and diet-related sources. There is also a handy shopping list, to add and manage so next time youre at the supermarket you can easily grab all your gluten-free products. Think BIG also make Vegan, Detox Diet and Super Foods app. http://www.macworld.com.au/app-guide/celiac-shopping-list-62115/









The research team included Robert P Anderson, Margaret J Henry, Roberta Taylor, Emma L Duncan, Patrick Danoy, Marylia J Costa, Kathryn Addison, Jason A Tye-Din, Mark A Kotowicz, Ross E Knight, Wendy Pollock, Geoffrey C Nicholson, Ban-Hock Toh, Matthew A Brown and Julie A Pasco. They are variously affiliated with the Walter and Eliza Hall Institute of Medical Research, the Department of Medical Biology at the University of Melbourne, the Department of Gastroenterology at The Royal Melbourne Hospital, Melbourne Health in Parkville, Australia, ImmusanT Inc., One Kendall Square, Building 200, LL, Suite 4, Cambridge, MA, USA, the School of Medicine at Deakin University in Geelong, Australia, Healthscope pathology in Melbourne, Australia, the Human Genetics Group at the University of Queensland Diamantina Institute, Level 5, Translational Research Institute in Woolloongabba, Australia, Endocrinology at Royal Brisbane and Womens Hospital, Herston, Australia, the NorthWest Academic Centre of the Department of Medicine at The University of Melbourne in St Albans, Australia, Geelong Gastroenterology, Level 1, in Geelong, Australia, the Rural Clinical School at the School of Medicine of The University of Queensland in Toowoomba, Australia, and Roche Diagnostics Australia, in Castle Hill, Australia. The researchers assessed human leukocyte antigen ( HLA )-DQ Genotype in 356 patients with biopsy -confirmed celiac disease. They did the same for two age-stratified, randomly selected community groups of 1,390 women and 1,158 men, who served as controls. They tested and screened all patients for celiac-specific serology . They found that only five patients with biopsy-confirmed celiac disease lacked the susceptibility alleles HLA-DQ2.5, DQ8, or DQ2.2, and four of these patients had been misdiagnosed. HLA-DQ2.5, DQ8, or DQ2.2 was present in 56% of all women and men in the community cohorts . transglutaminase (TG)-2 IgA levels were abnormal in 4.6% of the community women, and in 6.9% of the community men. Composite TG2/deamidated gliadin peptide (DGP) IgA/IgG were abnormal in 5.6% of the community women and in 6.9% of the community men. But in the screen-positive group, only 71% of women and of women and 65% of men possessed HLA-DQ2.5, DQ8, while 75% of women and 63% of men possessed DQ2.2. Medical review was possible in 41% of seropositive women and 50% of seropositive men, and led to biopsy-confirmed CD in 10 women (0.7%) and 6 men (0.5%). Based on relative risk for HLA-DQ2.5, DQ8, or DQ2.2, celiac disease affected 1.3% of men and women with positive TG2 IgA screens, and 1.9% of women and 1.2% of men with positive TG2/DGP IgA/IgG screens Serogenetic data from these community cohorts indicated that testing screen positives for HLA-DQ, or carrying out HLA-DQ and further serology, could have reduced unnecessary gastroscopies why not try this out due to false-positive serology by at least 40% and by over 70%, respectively. Requiring biopsy confirmation based on TG2 IgA serology leads to substantial underestimations of the community prevalence of celiac disease. Is Celiac Disease Substantially Underestimated?





The Educational, Social, and Family Challenges of Children with Celiac Disease: What Parents Should Know





Food cost is also a significant life change for many families. Parents mentioned their outrageous grocery bills, with some reporting that grocery bills doubled or quadrupled. While some indicated they were fortunate not to have a tight food budget, others described their budgets as being out the window and the nightmare of spending a fortune on gluten free food. One mother stated that she went to work part-time after her childs diagnosis to pay the grocery bills. Parents universally agree that eating in restaurants and attending social events are life changes that are extremely difficult and problematic. Many families dont eat out as much and there is typically underlying worry when they do eat in restaurants. Parents mentioned they miss restaurants they used to love, experience limited restaurant and menu choices, and are frustrated with no kid friendly gluten free menus. Many parents noted their children have gotten sick after eating in restaurants. Other families do continue to eat out, often in establishments they know they can trust, and are pleased that restaurants are more accommodating than they were in the past. Parents lamented that most social events involving family, friends, or organizations revolved around food. Many extended family members dont understand celiac disease and the necessity of eating and living gluten free. Attending family events was viewed as very stressful, leading to discord and arguments between parents. Parents reported the complexity of invitations to birthday parties, especially those at pizza and fast food eateries. Friends didnt know how to accommodate or were fearful of making a child sick and some friendships ended. One mother noted that it was very lonely at first and another stated that disease scares people away. While almost all families in the study experienced these challenges at some level, others remarked at how fortunate they were to have family and friends who go out of their way to accommodate. There are grandmothers who do gluten free baking, friends who order gluten free pizza and cake for birthday parties, and neighbors who keep gluten free snacks on hand for play dates. Celiac disease was reported to bring significant changes to travel plans and destinations as well as the frequency of taking trips. Food issues are huge, spontaneity is gone, and stress levels are high. Some families dont travel because all the effort went into where we can eat, while others make all travel choices based on where they can eat. Many mothers discussed horrible experiences traveling and huge coolers of food that were packed. One parent stated, When we leave the house for a trip its like treading water. Im nervous until we get to a destination where we can eat. I try to make sure theyre full before we get in the car. Another indicated that its more trouble than its worth. Still other families continue to travel frequently. They plan carefully, choose accommodations with kitchens, and use gluten free apps to find restaurant options. Some even travel world-wide to places like Australia, Trinidad, China, India, and Peru, without incident. Religious affiliation is also a life change affected by celiac disease. Church pot luck dinners and youth group snacks were mentioned as problematic, but receiving communion was the biggest challenge. While some churches allow gluten free communion wafers, others do not. Many parents wrestled with what decision they would make when their child was ready for first communion and some families reported that they left the church because of these issues. One family spent considerable time examining their allegiance to the Catholic faith knowing their son would not be able to fully participate. After much soul searching the parents decided they were very devout and made the decision to follow all aspects of the churchs teachings, including forgoing birth control. Baby number seven is on the way! The life changes resulting from celiac disease affected the mothers in this study more than the fathers. Mothers typically do more of the meal planning and preparation, grocery shopping, and child care, making them more vulnerable to the affects of gluten free eating on the family. Mothers reported stress, depression, anger, guilt, and anxiety after their children were diagnosed. One mother stated that she went into mourning for months and another reported that she was overwhelmed even though she is a nutritionist. Several mothers cried during their phone interviews. An unexpected life change that resulted from a childs celiac disease diagnosis came in the form of career changes. Several mothers transformed or altered their careers after their children started eating gluten free. One mother dropped her work time to twelve hours a week in order to have more time to grocery shop and cook, while another mother added part-time work to pay for gluten free food and a therapist for her son. Two mothers entered college and became nutritionists, one opened a gluten free bakery, and one quit her job to do gluten free awareness. Conclusions and Recommendations for Parents Celiac disease brings significant life changes and challenges to children and families. Almost all the children in this study did eat gluten free, both at home and at school. However, most children pack their lunches and only a small percentage of children have a 504 plan or IEP. celiac disease does have an impact on childrens academic performances and experiences, especially for those children who have extreme sensitivity to gluten. In addition, eating gluten free brings profound social challenges and life changes for children and families and the potential for mental health concerns. Mothers, in particular, are significantly impacted by their childs diagnosis and some experience stress, anxiety, and depression. http://www.celiac.com/articles/23602/1/The-Educational-Social-and-Family-Challenges-of-Children-with-Celiac-Disease-What-Parents-Should-Know/Page1.html