meh...

Today I feel ok, Woke up early, only slept 4 hours. had back pain neck stiffness, and my hands feel really really hot and as if the want to self combust... but over all mood mellow.

Replies

vgiles
vgiles

Glad your mood is okay, that\'s important. Only 4 hrs of sleep? Hey better than no sleep - may be the meds, I know prednisone keeps me from getting a good nights sleep. What are you using for your hands?
deleted_user
deleted_user

I\'ve heard some people with myositis say they\'re hands get really hot; for me I\'m the opposite & mine are always cold. Doc said it\'s called Raynaud\'s Syndrome where the veins etc are too small. My feet & hands get so cold they feel like they\'re going to break off, but heat aggrivates my muscles... can\'t win. :) But then hey I don\'t need nail polish because my finger tips are always blue. I guess that\'s a win as long as I color coordinate, LOL!

Lately I\'ve been having worse trouble sleeping. Work stress plays a part in that I\'m sure. Plus the weather is really starting to change here & that always disrupts my sleep. Hopefully we\'ll have the time change soon because I always do better on fall time than summer time. I wish we didn\'t even change the clocks... so annoying
milagrass
milagrass

Yea, My hands are usually cold white, or blue or like bright red. Dr said its called Ranauds Phenomenon. Cant open water bottles cook , open doors, drive, pick up my 11 lb dog etc....But the prednisone makes my muscles and hands kinda tingle and my normally narrow veins are huge!