Hi, I’m Sarah. I’m 19, and was just diagnosed with VIN I three weeks ago. This came after 4 months of near-constant pain in my vulva that started to severely limit my life—I had to quit my job, and was generally anxious every time I had to leave the house in fear of the pain starting in a public place that I couldn’t stop to make myself comfortable. I saw two different doctors who could come up with no answers, until the last one three weeks ago who had a suspicion it was VIN and did a biopsy that confirmed it.
It was a relief at first to finally know what was causing me so much pain and struggle in my life, but when he told me my treatment options, the future didn’t look so bright anymore. I opted to have the laser ablation done, figuring that I needed to go with the procedure that yielded the best outcome. I had the surgery done on October 4th, so it’s been about a week and a half into recovery now, and if I thought my VIN pain was bad, it’s a paper cut or a bruise compared to the pain I have been dealing with since the surgery.
The first three days were manageable, if not downright pleasant. I barely had any pain at all, just a little discomfort when I peed. That’s not to say I couldn’t feel (or see) that things down there were different, and my doctor had told me this reprieve would happen, that the actual pain was just around the corner. I learned this to be true when I woke up in the middle of the third night screaming because the pain was so bad. This was complemented with an panic attack because I had truly never felt so bad a pain in my life, and I have dealt with Leukemia before. Luckily, I had my mom, Xanax, and pain meds on hand, so the situation was adverted, at least until the next episode.
If I am being honest, this last week and a half has been a huge blur. It’s all just been about managing my pain, both physical and psychological. Let me touch on the latter for a moment. I had a bad breakup back in January, and that resulted in about a 6 month period filled with casual sex with more guys than I can count on two hands. If anyone is to blame for this current hardship, it is myself. Yet, at the same time, it kills me to know that one of these guys gave this to me, walked away scot free, and is out there living his life unaware of how difficult he has made mine (and even if he did know, he probably wouldn’t care). At this point, I am absolutely terrified to have sex again.
I’ve had cancer, and I deal with mental illness, but I have never been moved by either of those things to reach out to a support group, until my diagnosis of VIN. These past months have been so damaging to me, and I just hope that a resolution is close. I would give absolutely anything to be free of this pain. I wish I could write some sort of happy ending, but I’m still healing. Thank you so much for reading.
Hi, I was told last Friday that I have VIN II. I just had a pap in March and no HPV was found. Everything I've read said that VIN in my age group (46) usually comes from HPV. The non HPV related VIN is usually in the elderly. I don't understand. What else would cause this. I have a urology appointment on Wednesday because I have constant blood in my urine. And another GYN on Friday because my...
My sister was diagnosed with vulvar cancer in summer 2016, she recieved a round of both chemo (1x a week) and radiation (5x a week) - finished up Nov 2016. She has had only two "physical" exams since (10-11 months). Of late she has been very tired, and we discovered last week that she has a break out / sores in the crack area of her behind. Decribed as white patches, the doctor says some areas...