Hi there. I think it can often be hard to talk about TS with people because we feel they will think different of us, but remember real friends will understand and will offer you support. I know I told my best friend when I was your age and she has been supportive for the 23 years that we have been friends. It also helps to talk about what is bothering you.

Hey ya,

My advice would be to go for it. The more you talk about the more you and everyone else around you will understand and feel more comfortable about it.

Admittedly I didnt really tell many people as a teen ager but as I got older I told all of my friends and they have never been judgemental toward me because of the condition.

Good luck and keep in touch would love to answer any further questions you might have.
:)

I tell friends if the issue about no children comes up. Only a few people know. I think it is up to you.

Personally, I don't tell most people about it. Only a few of my closest friends and family know. Sometimes it's so hard to not say anything, though, when people comment about my being so short or when the subject of having children comes up. It gets frustrating. But if you're comfortable then there is really no reason you shouldn't talk about it. Just start off telling those closest to you whom you trust and judge by their reaction whether you are comfortable sharing that information with others.

Wither or not I tell my friends has never been an issue for me. I've always been open about my TS.

People always wanted to know where I disappeared to because I was in and out of hospitals for testing and my pediatric endo visits every 3 months (which I missed school for cause he's 3 hours away).

I did a speech on it for English class in 8th grade and even did my growth hormone shot in class during the speech. My classmates thought it was really neat and I wound up getting an A.

I also competed in speech from 7-12th grades and my senior year I was in the informative category and did a speech about my experiences that got me one point away from the State tournament that year.

I think I even did a speech in college about it.

Now that I'm an adult it doesn't really come up that often but now that I'm becoming more active in search for answers it's starting to again. People are curious why I'm leaving for an entire week coming up here (I'm participating in a clinical study) and of course I mention it when the children discussion comes up.

I've always found people to be supportive and have never had a bad experience because I've told someone (but I did have a guy brake up with me when I didn't get pregnant after a month when I told him from the beginning I didn't know if I could *rolls eyes*)

I have been diagnosed with TS since I was in the second grade. I am just now getting comfortable talking about it ( I am 21) and it is completely up to you who you wish to tell,but I would be choosy whom I told because kids can be cruel.

what a topic! I was diagnosed at a young age and am now 32. It was recommended by the doctors to tell everyone, at home and at school. Due to my case they said they now advise to not tell anyone outside the immediate family. I grew up having many difficulties with my family and friends accepting me. I have not told a living soul since I was a child that I have TS. I don't ever think I will have a significant other so I will probably never tell anyone. Ultimatley it is a personal decision and I hope that what ever you decide ti turns out well and you are happy.

No matter what it is you're thinking to tell people, you cannot untell them.

If you need to tell someone, discuss it with your mother, aunt or another good adult friend who happens to be wise, caring and socially well versed.

Choose who you tell.
It's not actually anyones business what your karyotyping is. Just as you don't know your friends blood types, or genotypes, they don't need to know yours.

It's all about what you need, so think long and hard, what do you need from your friends?
If you need them to know you, the chances are they already do know you and the better, closer more loyal friends you have probably won't differ much if they find out this personal detail about you.

The ones who would love to gossip won't change either, they'll probably use it as a gossip tool for a while.

I wasn't diagnosed til I was 27, and so lived childhood, high school and college life without considering my mosaic turners.
Now it's a very important part of my life, and I have shared it with my brother, mother and husband in it's entireity as I understand it.
However, other cousins and friends only know a little.
I'm very select about what I tell to who, and I am never shy to say "I don't want to talk about it any more"...I do that when people ask more than I decided I want to tell them.

If you want to talk about specific social matters and how TS might be effecting you, I'm sure if you made a detailed post, that other women here would be very helpful to your figuring out what's best for you.

Jo Xxx