Hi there! My name is Dana, I have an amazing little girl who is 5. I have known since birth that she had Turners Syndrome. I'm not going to lie, its been a struggle. At times, I do the blame game..maybe if I ate healthier, or slept more ect. I know that it has nothing to do with it & it was beyond my control .. and I know my daughter is my special gift & joy of my life. Although she is only 5, I am very honest & tell her she is different. That she needs to be an individual, and enjoy life. She often says how other kids her age call her baby and what not. As a mom I stay strong for her saying no matter she will always be my baby, its the size of your heart that matters. I try telling her good things come in small packages. It doesn't matter how little or big someone is that defines them, its how they live their life. I try to tell her she either needs to laugh it off or say those words aren't nice, they make me sad. I want her to stand up & be proud if who she is. However lately I'm having a hard time staying strong and listening to my own advice. When someone asks her age and I say 5, they give that look like get out of here no way. Or when we are at the park and she's playing with other kids her age or younger they just assume she's younger bc of her appearance. They from her she's to tiny so climb that or do something bc she's a baby..my mother instinct kicks in bc I see the look on her face & I sometimes want to say listen you little brat she's the same age as you!! Please know I have never done that but it just makes me sad. It's hard to think kids/ adults are just so vicious with comments these days if it gets me this upset what does it do to my little girl who actually has to deal with this all her life. If any of you have ever felt like this, please let me know its not me & I'm not alone. Any advice or comments are welcomed. Thanks for listening to me vent hopefully someone can related to how I feel.
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