My youngest daughter was diagnosed with the Mosaic form of T S shortly after birth through the amnio we did just before she was born. She was born 13 weeks early, so that was the least of our problems then. She is now 2 and still tiny. The doctors are treating her like she has full TS in hopes of medically intervening should something go wrong. We just came home from our bi-annually visit from her Endocrinologist appointment and he is really wanting to pursue the idea of the Growth Hormone Treatment. Is their anyone else out there with this form of TS? How has Growth Hormone affected your lives? Is it completely necessary?
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