Trigeminal Neuralgia Support Group

Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.

366 Members
1,603 Posts
0 Online
Brain & Nervous System
/ Trigeminal Neuralgia Support Group

surgery

deleted_user
deleted_user
three days to go until i have surgery. i am having the MVD done on tuesday. the funny thing is i havent had any severe pain attacks for a few days now. has this happend to anyone else? should i still go through with it. dumb question...if i dont then they will start up again and i would have to wait.
deleted_user
deleted_user
You postponed it once before and look how long it took to get another surgery scheduled. You should go ahead with the surgery. It will make such a difference in your life.
Becky
deleted_user
deleted_user
today it the day...im very nervous and scared. surgery is at 1130 am need to be there at 945. its been a long morning already.
elaine
deleted_user
deleted_user
Well I hope your surgery went well!!! What kind of surgery was it. I'm not real familiar with TN surgerys.AMeans
deleted_user
deleted_user
I had the surgery back on October 2nd, 2007... Instead of 1 and 1/2 day stay in the hospital I was there for 4.. They found 4 viens in my face twisted with the main cranial nerve on the left side of my face which was causing my pain.. and right after the surgery I had alot of pressure/pain in my head. The doctor gave me steriods and they seemed to take care of it.. I am feeling great, still deaf out of my left ear (The surgeon said it would take 6 weeks to get my hearing back.) The best news is that I havent had any TN pain at all since the surgery.. My life is so much better now and I highly recommend the surgery to anyone.. I even have Atypical TN and I think the surgery took care of it.. atleast for now. :)
If the teflon patches shift or move, and I start getting pain again, the surgeons will just go back in and fix it. I posted a lot of information about the surgery in my journal, so if you're interested, ask or add me to friends and you can check it out. :)
I hope the surgery goes well for you and anyone else who decides to get it.. Again.. I HIGHLY recommend it. :)
PS- mine was done in Pittsburgh, PA
deleted_user
deleted_user
hello i had the surgery and it didnt work my face is still in pain my face is still always swollen. i was told that it happens to 5% of the time it does not work and im in the 5%. i got the teflon. im always in pain and i dont know what to do any more.
Posts You May Be Interested In
  • irishwriter

    come unwind in the bp lounge

    Posted by: irishwriter
    Last Reply: irishwriter
    7916
    theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
  • Rizen

    Walk a Day

    Posted by: Rizen
    Last Reply: mujicaptsd
    1886
    I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...