Trigeminal Neuralgia Support Group
Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.
I have had a change of medication to neurontin and that is handling the day to day pain. Last night and today, I am having what I can only describe as pain spikes. More intense pain in jaw, behind my ear, stabbing pains in the top of my head and above my eye. I wonder if this is a pattern with TN, and that I need to make adjustments to having good days and bad days and go with the flow a little bit, instead of fighting it. Would love to hear others experience on this.
Neurontin is not subsidised here in New Zealand, so at the moment the Dr is sending off a request for funding for me. Please keep your fingers crossed for me, that it comes through, as $82 for 2 weeks of tablets is not possible on my income as an invalid.
Shona
Neurontin is not subsidised here in New Zealand, so at the moment the Dr is sending off a request for funding for me. Please keep your fingers crossed for me, that it comes through, as $82 for 2 weeks of tablets is not possible on my income as an invalid.
Shona
deleted_user
Neurotin was not good for me. It gave me double vision. I do take Lyrica and Cymbalta. They don't seem so good either. Considering I do have most of the same symptoms as you. I take Vicodin when I have those spikes. Not a heavy dose but enough to help ease the spikes. I hope something works for you. I am with ya though. I have had horrible pain in the last two weeks and just want to crwl in a hole. I can't though I have a job and a family. I love life to much for that to happen. Take care of yourself and know that you are important! Take time for yourself!AMeans
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