My Mom has this condition and is in the hospital right now because of it. she is 84 and this past week (Friday last ) another episode started and did not stop despite the fact I was giving her meds for it for 4 solid days. She couldn't eat except I had to force liquids (Ensure, juices, broth) to just keep her going. She finally got relief in hospital with strong pain medicine and steriods. The neuro, Dr. Abrams and Dr. Woodard, Nashville, TN, are suggesting radiation treatment to the nerve as a possible treatment, but they've given no guarantee. We are so at a loss as my sisters and I had never heard of this till Mom was diagnosed, about 2 years ago. She's had MRI, they can't see any reason. She does have tumor in the area of brain stem, no cancer, but they have assured us there is NO connection.
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