I have had TN for approximately 15 years. I normally have flair ups once or twice a year where I have to increase my Tegretol for a little while and then I can cut back again. This time the pain has been unbearable! I was taking 150mg a day and I am up to 1200mg a day and it isn't helping. They say to cut back on stress. I am a 911 dispatch for a very busy agency and that isn't an option. The Tegretol makes me loopy hence I'm having a hard time at work. I guess my question is three fold....have any of you had sucess with any meds other than Tegretol? Also the neurologist I use to see has retired and I can't get my medial records including my MRIs and I am thinking of going to Boston to have the gamma knife surgery. Do any of you know what they will require me to have? Which leads me to have any of you had the proceedure? I am looking for both the good and the bad. Thank you for any help you are able to provide.
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