Trigeminal Neuralgia Support Group
Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.
After finishing my Tae Bo exercises this morning I was feeling great. But, by the time I had finished doing my stretches the pain in my left jaw was begining to intensify. It grew from the bottom of my jaw to my gums feeling like they were going to burst to this shoting pain going up toward my ear. Not to mention it felt like someone was cutting into my gums and losening all my left bottom teeth. I tried to set calm like it has been advised on various website about TN but, it was too much. I tried to be a big girl and not cry but, it was no good. I had to turn the TV off because the violin playing on the movie I was watching seemed to make it only worsier. When I could take it no more I curled up in a ball and held onto my pillow. I don't know how long I lay there trying to think of anything but the pain. Once the attack was over I got up and was able to shower and start my day. The pain was'nt completely gone but, I was able to function. Then I made the mistake of fixing some cereal w/ banana and some sausage for breakfast because when I started chewing the 2nd attack slowly began. The intense pain lasted only 5 minutes but, bearable pain last most of the day. My husband called after the 2nd attack and trying to explain it to him was like talking to the wall. He asked me what was it and once again I tried to explain it to him and once again he did'nt know what I was talking about. So, how do you explain it?
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I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
I have atypical and one of my worst prolonged periods of attack, was after I agreed to go to a Salsa Aerobics class with a friend. It was the first and only time I ever did that. I was fine in the class, but walked home in the cold without protecting my face. I got home and the attack started. I was staying with my BF and it was so awful, I had to go downstairs and sit propped up on the couch, which the TV on mute to distract me and a warm hot water bottle to keep me from getting cold.
I have so many times got to that point you describe where I end up crying out of not only pain, but frustration.
The suggestion of a journal is a good idea. Also be really careful what you eat and drink. Nothing too cold or too hot. I try and eat things that lukewarm and softish. I also wait till hot drinks are tepid. I am not a cold drink fan anyway, but if I must have one, I have to choose something I can tolerate at room temp.
this is always so interesting and confusing. i asked my neurologist repeatedly what caused this and he said repeatedly LIFE. it just happens. more to some than others and certainly more as we age. it comes out of nowhere. i have heard of instances that air travel is a big factor because of atmospheric changes and certainly hot and cold in the mouth. good luck with your solotion.
rrakers1