I am a WF, 43, and am experiencing right-sided facial pain, pinpoint pain in back occipital region right side, facial spasming right side, some drooling right side, ear pressure right side, eye pain (especially with movement) right side and pain which goes down the side of my neck also right side with muscle spasming. Pain worsens when I lay on my left side, or when I lay on my back, decreases when I lay on my right side. Worsens with the lightest touch to my face, or back of the head, worsens when talking, or eating, or changing position from high to low.
I had an MRA, and Brain MRI - all normal, though posterior arterial structures not visible (assuming due to no contrast). My situation started with eye pain with eye movement which would go straight to the front of my eye to the back of my head.
I am kind of at a loss, as some of my symptoms due to track with TN and others to me do not. I had a positive IGG/IGM test for Lyme, then Western Blot which showed only two bands, so by today's standards negative. I am in an area endemic to Lyme (both of my dogs, were treated this year, and also one had anaplasma. Daughter had an infection of unknown origin w/ wht count of 29.0, and was treated w/IV ABX on admit for a period of six days....so not sure there, no culprit determined.
SO, do I ask for repeat Lyme testing? Do I ask for repeat MRI? Does contrast matter? IS CT better to look at more structures (though less specific)? Cervical MRI? LP to look for autoimmune/infection?
I just don't know what direction to head in at this point, and I feel that I am at a loss as to what to do...I have had transient chest pain on two occasions, once taking me to the ED.
Was also tested for Histio earlier this year, because I do cave w/ my parents in the summer on visits.
I know most of you aren't doctors, but interested in some feedback about your symptoms, particulalry if they seem wholly a typical like mine.
I do have a twin sister with RA and Cluster Headaches, but these haven't been part of my health wheel to date...her headaches level her, my pain is more along the lines of a five (1-10) and constant, with bursts seldom with eye movement at 10. The spasming is the most annoying part of my picture (though it is painful, and presents with a lot of pressure throughout the right side of my head).
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