Hi, my daughter is 10 years old. She is in 5th grade. In 2007 she had spinal cord detethering surgery and since then has been doing fine. Last year Sammi started having anxiety-panic at bed time which caused issues with sleeping and such.. then she began clicking her neck.. not often but a few times a day. . we just assumed it was due to stress and mild scoliosis. So they did xrays and that came back ok. Then after time she would constantly clear her throat or wistle.. I would always ask her to stop as it drove us nuts.. I never got upset bc I knew she was tryin gto but she just could not. Then she started smelling EVERYTHING.. especially food .. about a week ago the neck ticking got worse and along with it came clicking of her wrists.. she turns them inward and they twitch. SOOO that promted us to see a doctor who told us that she has TS. I have been in and out of shock. She has a great support system of family and friends and her new school seems to be rather great.. she does not seem to badly affected by it.. it does cause pain in her hands and neck after a long day worth of it.. but other then that she seems ok.. I however can not stop walking away sad.. I do not want her to see my sadness. She is going to the neurologist in two weeks.. we are traveling four hours to get there.. any advice on what to expect or how to handle this would be greatful.. I am sure I will have more questions soon..
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