Hello All! I am new to this group. My story begins when I was 4 months pregnant with our twin girls, last November. I started getting really stuffy and congested when I was pregnant, which I heard could happen, but then all of a sudden I could hear this whoosing sound in my Left ear whenever i bent over or turned my head side to side. I also started having terrible nose bleeds on my left nostril daily, also thinking because of the pregnancy. I saw my regular doctor who reffered me to an ENT. I saw one ENT and she said I had fluid in my ear, did a hearing test and was fine, but couldn't do anything about it as I was 7 months pregnant. She cloterized my nose to stop the bleeds, but said would have to wait until the babies were born to fix my ear. Ok well 3 days later my girls arrived,way early, but today are 7 months and are doing amazing. So after they were born the tinnitis seemed to get worse. I then saw another ENT but she was a PA, she looked with a microscope and said she could see fluid in my ear, but, in the state of WI she can not leagally put a tube in my ear so I would have to see another ENT that puts in adult tubes, im 34. Ok, so i see this other guy a week later and he tells me he doesn't see any fulid in my ear, which he never looked with the microscope, and he thinks that it is all hormonal and would go away in about 6 weeks. Told me the PA that saw fluid is just a PA, not a MD! FRUSTRATED!!! So I give him a piece of my mind and walk out. Somehow the 1st DR I saw found this out and scheduled me with the other DR that does adult tubes. Weeks later I meet with him for tubes and he tells me no fluid in my ear and I dont need tubes. OK! WHAT next!!! So he tells me it cold be a tumor and i need to do all these tests. I have had and MRI w/contrast, CT, ABR, VEMP and nothing seems to come up! They tried a steriod for 6 days and that didn't work. I got soo upset i saw my regular doctor and she referred me to someone at Mayo in Rochester MN. Finally they call me to schedule an appt and the lady says im going to have to ask the doctor how to schedule you cause you have already had soo much done. 4 weeks later I call back and they tell me that the doctor denied the referral as they have nothing else to check and to follow up with my regular doctor or ENT! What in the world do i do?! I just want to crawl out of my skin im soo sick of this noise in my ear. I sometimes get a feeling that even the doctors don't believe me. They said i would just have to live with it or they could give me a drug like valium to take daily as I am sooo intune to my body and thats why I hear this sound! BS! Something is wrong! I feel like i just want to pop my ear but it wont pop. Im sick of beding over to check on my babies and hearing this noise every single time! It will be 1 year since the problem started and nothing has helped! Any advice??? I feel as im going crazy over this!
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